10.25.2011

Shirt Deadline

This just in.....

If you want a shirt for the St. Jude Marathon Weekend-Team Lucy, the deadline is tonight!  That's right, TONIGHT!!!!  Contact Kristie @ jklyons99@bellsouth.net

Meeting with our new PT tomorrow.  Lucy is stoked!  She did her 9 week assessment today with Mrs. Beverly and I am super excited to tell you that she is right on track!  She was not behind in any area.  That's my girl!  We had today off and tomorrow, too.  We go back to St. Jude on Thursday for what will, hopefully, be our last B Clinic visit.  We should be transferred back to E Clinic then.  After that, we are just in a holding pattern until her platelets stabilize at or above 50 and she proves she can sustain herself calorie-wise.  I am so ready to see that central line gone, but I don't want to rush into anything that might jeopardize her health. 

It's 7:30 and I am literally exhausted.  I don't know if I am even writing coherently.  I am going to bed.

Gratuitous Picture:


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6 comments:

  1. Little Lucy looks like she is doing better. So happy that she is (hopefully and God willing) home for good. Will continue to pray for you and yours!

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  2. Awhh, Daddy's girls!!! LOVE that!!! Answered prayers:) & still praying:)
    XOXX Tracie

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  3. What a PRECIOUS picture, one that has been a long time coming. Lucy looks better and healthier in every photo and it is such a good feeling to see you all home. I am sure that you still are having a hard time adjusting but it is only going to get better. GO LUCY and Family.

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  4. So thankful ya'll are home! Praying!

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  5. here is another mom who is having a hard time with there daughter just finding out. maybe you could send her a word since you know first hand what it is like

    http://www.caringbridge.org/visit/madisonwilliams1

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