Thursday, January 5, 2012

Adventures of a Wagon

I'm sure this will not amuse anyone but me, but today we had many adventures with a red wagon.  Jack came to visit Lucy and me in the hospital and let's just say it was....well, exhausting.  That boy is into everything!  He punched every button he could find in Lucy's room.  I finally ended up just letting him pull this huge red wagon down the hallway.  It must have been twice as big as him, but he man-handled that thing like it was a stuffed animal. 


He couldn't even sit still when he was buckled in the wagon!


And then I figured out I could attach Lucy's pole underneath her red wagon and we could stroll alot easier. 


Last night Lucy's blood pressure dropped to 80/18 at its lowest point.  We had every doctor in this place in our room trying to figure out what was going on.  She was totally a-symptomatic, but still there was an obvious issue.  We never figured it out, but she did have to have a new IV at 1:00am.  That's 3 days in a row for a new IV.  Her little hands and arms are black and blue! 

Lucy is doing great with her feeds right now.  Her body seems to be adjusting well and tolerating this new influx of calories.  If all goes well, we hope to be home by tomorrow afternoon.  Thanks for your prayers!


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25 comments:

  1. I would gladly give Lucy about 10 points of my blood pressure if I knew how to transport it to her! I have my fingers crossed that all goes well and you are back to being a party of 5 tomorrow!

    The photos of Jack are hysterical. There may be a truck company with interest in hiring him.

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  2. You have now officially entered into the world of a boy! No sitting quietly playing with dolls or drawing for a boy. I had two boys first and then a girl and was amazed at the difference from very early on. Put your running shoes on-you will need them to keep up with Jack-but you will love every minute! Just as fathers and daughters have a special relationship, so do sons and moms. So glad to hear Lucy's feedings are going well. Praying they continue that way.

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  3. I know that we've never met, but after reading your blog for quite a while I feel like I know your family. And each time I see a picture of sweet Lucy I just want to give her a hug. Seeing that smile and those sparkling eyes after all that she has been through is truly inspiring!!!

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  4. Lucy is SO beautiful! I bet she will start feeling so much better with food in her belly!

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  5. She goes through SO much (although, as a PT I think this consistent caloric influx is just what she needs to participate fully in her rehab, etc.). Does she get nervous when you take her to the hospital, wondering how long she will have to stay this time?

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  6. Still think/pray about/for that sweet little girl all the time!

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  7. Praying for all of you and especially sweet Lucy!

    Cathy

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  8. Hi Kate!!!

    Thank you for the update!!! I was sooo HAPPY to hear Lucy is doing much better now!! I hope you guys will get to go home tomorrow & will finally be able to rest & seek the PEACE you need & deserve!!!

    I will check back tomorrow.
    My Best.....
    Jenn

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  9. Oh, I remember both of my kids being just like that. Moving from the time they were up till they went to sleep at night. Fun times tho, enjoy it before the "NO" comes in. ;P

    Continuing to pray for Lucy!
    She looks better already.
    <><

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  10. Go Lucy Go! Still praying & following your amazing journey... God is good & Lucy is a rockstar!

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  11. Good grief. That wagon is huge. How does he do it? And what will he do next? Boys are so different than little girls. I'll never forget the permanent marker railroad tracks my toddler boys drew around their room on newly installed wallpaper. It was humbling.

    I'm glad Lucy's adjusting to her feeds and that her blood pressure problem has resolved. The Lord is her shepherd.

    Prayers for all tonight. God is with you right now.

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  12. That is one cute little boy you have! I never understood it when I would hear other parents say "my child is into everything" because my first three were MELLOW...then I gave birth to a hurricane with legs. I also now understand why people have to ultra child proof their homes...I have found my 3 yr. old tornado boy on the counter, trying to escape out the back door, attempting to fix himself a pb & j sandwich, and hiding behind the couch eating candy canes, among various other small toddler crimes. Mind you, I have not been far away
    when these things happen, he just has that sneaky thing down to a science. I may start my own support group called "Mothers of Tornados" (MOTs). I sure hope that feeding tube gets Lucy to feeling better SOON, and give her awesome big sis a huge hug... you have beautiful kids, all three of them...wishing you lots of rest and energy in the next few days!

    --Sandra :)

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  13. Lucy = fighter. I'm constantly amazed at her ability to take what is thrown at her. Praying you get to go home today. Take care!

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  14. I read your posts every morning, even though I don't post very often, you are in my prayers, each and every one of you! You are so brave, I can't even imagine the tourcher that you are living....

    Love from a friend in Illinois!

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  15. Just wanted to say that I stop every day to pray for Lucy and your family. I have a prayer journal with photos that I use for my IRL friends and family(because I need to see who I'm praying for). Stopping here gives me a beautiful visual of your sweet girl. Blessings!

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  16. I'm so thankful to see her smile. I prayer for you all daily.

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  17. I also have a wild boy like Jack- he is a couple of months older, but what you described at the hospital sounds just like him. He pushes every button he can find and is NEVER still unless he is asleep! So much fun though.

    Glad Lucy is doing well. What a blessing.

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  18. Kate,
    We started off with a "Jack" and our next boy was very mellow, just as stubborn but more mellow. Then the girl! Wow, what a difference. I was so used to the hustle and bustle that she really changed our lives, in a calm kind of way. (they are 10 years apart). How fun are they!!!
    God is answering our prayers every day with Little Lucy.
    Praying for continued strength in every issue of your life and an abundance of Peace!!

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  19. Praying for Lucy in Louisiana! :)

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  20. Yippee! Love to hear good news about Lucy! Praying she gets to go home soon. She looks so happy in the last picture.

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  21. We've followed your blog from day 1. Sweet Lucy looks so much like my 5 year old, Emily. She asks about Lucy often and prays for her all the time. It's so sweet how they've never met, but Emily thinks she is her friend. I cannot begin to imagine what you've gone through the last year. You are truly one of the strongest, most admirable women! We pray for all of you often!!

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  22. Oh my goodness, the pictures of Jack remind me so much of Lleyton while we were there--she was a wild child! What a cutie he is. Glad to hear L is tolerating her feeds well--still praying this will be short-lived and will jump start the healing. I miss you!

    --Sarah

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  23. I know that we've never met, but I check your blog everyday. I have a seven year old myself who was thought to have Leukemia thankfully she doesnt at this time they are unsure what she has so she goes through a lot of testing and ilnness :( so hard on a child so unfair. Each time I see a picture of Lucy I just want to give her a hug and i get tears in my eyes just trying to imagine what you are going through and her as well. she has been through sooo much and its truly inspiring to see how she handles it all!!! prayers are with you

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  24. Wow Kate, great news, and that last photo really shows what a beautiful child Lucy is!!

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