I'm sure this will not amuse anyone but me, but today we had many adventures with a red wagon. Jack came to visit Lucy and me in the hospital and let's just say it was....well, exhausting. That boy is into everything! He punched every button he could find in Lucy's room. I finally ended up just letting him pull this huge red wagon down the hallway. It must have been twice as big as him, but he man-handled that thing like it was a stuffed animal.
He couldn't even sit still when he was buckled in the wagon!
And then I figured out I could attach Lucy's pole underneath her red wagon and we could stroll alot easier.
Last night Lucy's blood pressure dropped to 80/18 at its lowest point. We had every doctor in this place in our room trying to figure out what was going on. She was totally a-symptomatic, but still there was an obvious issue. We never figured it out, but she did have to have a new IV at 1:00am. That's 3 days in a row for a new IV. Her little hands and arms are black and blue!
Lucy is doing great with her feeds right now. Her body seems to be adjusting well and tolerating this new influx of calories. If all goes well, we hope to be home by tomorrow afternoon. Thanks for your prayers!
13 hours ago