1.04.2012

Day 2

Lucy had a really rough night last night.  She had a horrible time emptying her bladder, so around 11:00 pm the nurse came in to do a Foley.  I think it must have scared Lucy enough that she finally went a tiny bit.  It wasn't enough, but it kept the cath away.  Lu finally asked to pee in the bed (which meant a bed pan) and after that she was much more comfortable.  We did have to wake her every 2 hours to make her potty.  Then, on top of that, her vein blew where her IV had been placed and it took 2 nurses and 3 sticks to get another stared at 4:00 am.  We finally got some sleep between 5-9am. 

Today started off better, but she was in a lot of pain from her surgery.  The Dr. had warned us that due to the fact that she was so skinny, she would probably be in a little more pain than the normal child.  Imagine that, Lucy being anything but "normal." But her pain was well maintained and she managed to spend some time playing on the computer and playing with her sticker book.


Tonight we are really watching a low blood pressure issue that she has developed.  The Drs. aren't too worried about it, but it is making me very uneasy.  I am so very tired, but I just can't sleep until I know that her pressure is coming up.  We are going to check every 30 min until we see it come up and then stabilize. 

I got to meet with my sweet friend Kristie and her husband Jerry tonight and was able to love on Justin for a minute.  It wasn't long enough.  Please say an extra prayer for them tonight.  My heart is bleeding for them tonight.

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15 comments:

  1. Oh, these photos just break my heart. Praying right now that Lucy has a much better day tomorrow without pain and that you get much needed rest.

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  2. I wish I could be there and stay up for you, but of course I cannot. You are so strong and Lucy even stronger. Prayers for you and your girl as always.

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  3. Kate,
    My thoughts are prayers are with you, your family, and Justin's family tonight and always.. your story has captured my heard and I pray daily for healing, answers, and comfort for those dealing with cancer. Please let me know if there is anything needed at this time. I am here in Memphis, we have talked a few times, and I am here to help in any way possible.. Godspeed my friend! Hugs!!!

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  4. I came across your blog from a friend's blog and have spent the last couple days reading your story. First of all, I'm praying for you all and for Lucy. I have been inspired by you and your faith. During the past few months, we have gone through some trying times and there have been a few verses that have stayed with me.

    Romans 8:28
    New International Version (NIV)

    28 And we know that in all things God works for the good of those who love him, who[a]have been called according to his purpose.


    Jeremiah 29:11
    New International Version (NIV)
    11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.


    Galatians 6:9
    New International Version (NIV)
    9 Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up.

    You are inspiring people through your faith and Lucy's story will change lives. God is good all the time! Thank you for reminding me to count my blessings everyday.

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  5. Oh, breaks my heart to see Lucy in a hospital bed. Praying that the blood pressure issue resolves soon so that you can get some rest. Such a long journey with so many hills to climb. God bless you all.

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  6. I am crying out for you right now. I know our God is holding Lucy and you but I ache for Lucy to be well. I hope you can find comfort that even strangers are praying for your family. God bless you and give you rest.

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  7. Praying for all of you and hoping that Lucy is feeling better this morning.

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  8. Praying for your sweet Lucy and for you!

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  9. Praying and praying for Lucy. Poor girl having such a rough time. Praying for stability, rest and no more pain. I will be lifting Justin and his family up to our Lord too.

    <><

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  10. Immediately thought of your family when I saw this video on a friend's FB wall this morning. Hope y'all get even more rest today.
    http://www.youtube.com/watch?v=AjIagi7QKHQ
    Love,
    Amanda

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  11. Kate,
    My heart is breaking for you as Lucy suffers. Nothing is worse than our kids hurting. We are praying for strength and healing for your sweet Lucy.
    We are also praying for peace and comfort for Justin and his family. This is all too sad for you, them and all of us praying.
    Our prayers are with you all!

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  12. Praying for sweet Lucy and all of you. You are an inspiration to me and all moms. Hang in there, better days are coming:) This will be the jump-start Lucy needs.

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  13. I've been following your blog for about a year now. I pray for your family often.
    I hope this new year will be a good one for you all...especially your special Lucy!

    Stacy

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  14. oh thank you for posting!!!! i was so very anxious to hear how she was doing! im so thankful she is doing pretty good right now!! i pray she has a good nights sleep and the pain decreases!! i am praying for you all!!!

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