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10.28.2014

Prayers Needed Tonight

Dear Friends,

I am writing tonight to ask for prayer for two young friends. Ava, who I have mentioned so many times before, has relapsed. Her MRI showed that her cancer is back and unfortunately they don't have a good game plan. 

Our new friend Mason will be having scans tomorrow morning at 8:00. Please stop what you are doing and please pray that his cancer has not returned. His life is very fragile right now and he needs to keep fighting. 

Here is what you can pray:

1. Pray that both sets of parents and families will have peace, understanding and wisdom for the future. 

2. Pray for complete healing for both children. Pray that the God of miracles will place His hand upon both children. 

3. Pray for the doctors. Pray that God will reveal to them the right path for treatment. 

I am heartbroken tonight. I am consumed with guilt for carving pumpkins with my family tonight while two families have lives hanging in the balance. I am numb with sadness for Ava and her family. I am scared for her parents. I am sick
to my stomach as I think about Mason's parents waiting on his scans results tomorrow. 

Cancer is evil and nothing about this is fair. I am crying out to the Lord right now for mercy and healing. I just wish there was something more I could do. 

Please pray. Pray with urgency my friends. 

10.22.2014

You Did It!


Yes!  You did it.  We did it.  GOD did it!  Thanks to you the Go Lucy Go Foundation raised over $51,000 last week at the dinner and auction.  I am still in awe over what a wonderful event we put together.  There were many hours invested and lots of sleepless nights but we did it!



I owe a debt of gratitude to every person who gave of her/his time, to all the sponsors and to all the people who gave donations to the auction.  My list of thank you notes to write grows every day as I think about every single person who contributed.  God is so good and continues to provide.  The night was beyond my wildest dreams.

Thank you especially to Geoff Calkins and Brandon Roten for being our guest speakers.  Geoff has an amazing story to tell and Brandon had me in tears from the moment he started speaking.  He somehow managed to put into words every single emotion and fear that Erik and I still live with everyday.  I was speechless when he got through, and that doesn't happen very often.  I sat with my heart pounding out of my chest as he spoke.

Brandon spoke of "normal", something I've written a lot about on this blog.  What is normal anyway? Whatever it is, it's gone when you have a child diagnosed with cancer.  Goeff spoke of fried clams,  which was his "normal" when he was being treated for Leukemia as a child.  It all tied so perfectly together in a way I could never have imagined or planned.

But you see, that's what the Go Lucy Go Foundation strives to do.  We want to give every child, every family, a chance to be normal.  What ever little bit of normal they can find during this journey, we want to be able to give it to them.  We can't take away cancer and we can't heal their sick child.  We can't change their situation but we can try to help them find a ray of sunshine in an otherwise black sky.

Thank you for your support.  Because of you we will be providing lots of glimpses of "normal" in the coming months.

10.12.2014

Jack Turned 4

So much has happened since I last blogged.  It's a constant frustration that I'm sure many moms experience.  I so want to document every day of our lives, after all this is our living journal.  The problem is that if you really want to live every day there is hardly any time left to actually sit down and write about it.  Until I figure out how to find a balance, or hit the jackpot and hire a full time assistant, I'll just keep doing my best.

Jack turned 4 in September.  We celebrated by doing what he loves most.  Playing in a bouncy house on a wide open field with lots of room to run and be wild.  12 of his sweet friends came to play and we celebrated in Optimus Prime style!





Oh, this precious boy.  There are not enough words in any language to begin to express how much I love this child.  I still find myself questioning the timing of his birth, so close to Lucy's diagnosis and after we had tried so long to have him.  Even though I wonder I know in my heart that Jack was sent to be a source of love, purpose and sometimes a distraction at such a hard time in my life.  I am so grateful to be his mother.  He is so full of energy, determination and love.  Jack gives the biggest and best hugs and when he sets his mind to something there is no stopping him.  I joke and say that I always wanted a house full of boys but clearly God knew best.  This one keeps me on my toes every minute of every day.  I'm quite sure I couldn't have handled more than one of him!






I'm not sure how I ended up with no pictures of Erik's parents but I promise they were there.  The birthday weekend was so chaotic that I couldn't have made it without them.  Jack wasn't too worried about his family being at his party but it meant the world to me.  We have been blessed with two wonderful sets of parents and amazing siblings.  Being all together makes any birthday more special.  

Until next time...you can find me living life and loving this little boy named Jack.   

10.06.2014

You've Got to Read This



Have you bought your ticket to the Second Annual Go Lucy Go Dinner and Auction?  Well, if you haven't you better do it quickly!  The tickets are going fast and we want you to be a part of the event.

Last year's event raised more than $50,000 for The Go Lucy Go Foundation and LeBonheur.  This year's dinner and auction is set to be even more exciting than last year.

Guest speakers this year include Geoff Calkins, nationally known sports writer, and a special LeBonheur/St.Jude family who will be telling their daughter's story.  We are honored to have Ava Roten and her family join us for this wonderful evening.

The night is going to be filled with dinner, live entertainment and a live and silent auction.  There will be over 100 items silent auction items and some really great live auction items.  In the live auction you can expect to see a vacation in Winter Park, Colorado, a beach vacation to Florida and like last year some really nice jewelry!

You will also have the opportunity to purchase specially create items that will actually be given to the children who are fighting brain tumors and other neurological diseases.  I promise you don't want to miss this night!

Most importantly, you have a great opportunity to support the work of the Go Lucy Go Foundation and the NeuroScience Institute at LeBonheur.  We hope to see you October 16th.

Click HERE to purchase your tickets.