5.25.2019



It’s been quite a while since I’ve posted. 2016 to be exact.  So much life has been lived since that time.  Remission, middle school, high school, building a new house, a new puppy, baby Jack no longer a baby, double Cochlear implants, horse therapy, drivers license, and most recently a major reconstructive foot surgery.  It makes me tired just talking about it.  

Right after Lucy was born I started my blog as a family scrapbook.  After Lucy was diagnosed, this space became a safe place for me.  It was a place where I could go and say all the things I was feeling or thinking.  Often the words flowed almost as quickly as the tears.  So many people decided to read along each day and I will forever be grateful for that.  I truly believe that it was the prayers of so many readers that brought us through some very hard days.  

Coming back to this safe space has been quite a journey.  It’s been since that post in 2016 that I’ve even opened this page.  I’ve often wanted to write but I just couldn’t.  And who knows?  Maybe I won’t visit this page for another 3 years, but I’d like to think I will.  

Our family has changed in so many ways.  Each child has reached amazing milestones and continue to make my heart swell with pride.  For kids who have been through hell and back, they sure are rocking life.  Erik and I have faired pretty well, too.  Our priorities as parents have changed and that has helped us keep our crazy ship afloat.  Home life is challenging when you parent a child with special needs, and I promise its not near as easy as most families make it appear.  Our household would not function without us working as a team, as every day presents its own challenges.  

There are so many things that I want to share; so many milestones I want to remember.  There are parts of Lucy’s (and our family’s) story that deserve to be told.  Beating cancer was a major victory, but life since then has been hard.  There are still many tears shed and lots of questions still being asked.  We were given a “new” child at the age of 6 that we had to learn to parent.  We also had to figure out how to parent the siblings of that very special 6 year old.  Some days are better than others, but I think we are doing pretty darn good!  

For anyone out there that still may read this, “Thank You!”  Thank you for loving our family through this crazy thing called social media.  Thank you for praying for us.  I’d love it if you still would.  Hopefully over then next weeks/months I’ll be able to go back and recap life over the past 3 years.  It’s been a wild ride for sure!