5.25.2019



It’s been quite a while since I’ve posted. 2016 to be exact.  So much life has been lived since that time.  Remission, middle school, high school, building a new house, a new puppy, baby Jack no longer a baby, double Cochlear implants, horse therapy, drivers license, and most recently a major reconstructive foot surgery.  It makes me tired just talking about it.  

Right after Lucy was born I started my blog as a family scrapbook.  After Lucy was diagnosed, this space became a safe place for me.  It was a place where I could go and say all the things I was feeling or thinking.  Often the words flowed almost as quickly as the tears.  So many people decided to read along each day and I will forever be grateful for that.  I truly believe that it was the prayers of so many readers that brought us through some very hard days.  

Coming back to this safe space has been quite a journey.  It’s been since that post in 2016 that I’ve even opened this page.  I’ve often wanted to write but I just couldn’t.  And who knows?  Maybe I won’t visit this page for another 3 years, but I’d like to think I will.  

Our family has changed in so many ways.  Each child has reached amazing milestones and continue to make my heart swell with pride.  For kids who have been through hell and back, they sure are rocking life.  Erik and I have faired pretty well, too.  Our priorities as parents have changed and that has helped us keep our crazy ship afloat.  Home life is challenging when you parent a child with special needs, and I promise its not near as easy as most families make it appear.  Our household would not function without us working as a team, as every day presents its own challenges.  

There are so many things that I want to share; so many milestones I want to remember.  There are parts of Lucy’s (and our family’s) story that deserve to be told.  Beating cancer was a major victory, but life since then has been hard.  There are still many tears shed and lots of questions still being asked.  We were given a “new” child at the age of 6 that we had to learn to parent.  We also had to figure out how to parent the siblings of that very special 6 year old.  Some days are better than others, but I think we are doing pretty darn good!  

For anyone out there that still may read this, “Thank You!”  Thank you for loving our family through this crazy thing called social media.  Thank you for praying for us.  I’d love it if you still would.  Hopefully over then next weeks/months I’ll be able to go back and recap life over the past 3 years.  It’s been a wild ride for sure!

57 comments:

  1. So happy to hear your updates!

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  2. Still here - sending prayers!

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  3. Happy to hear your updates. Still praying for your family.

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  4. So happy you are blogging. I love hearing about your family and still praying for you all.

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  5. Hi I really appreciate your all efforts which is specially for the Baby and baby care keep more posting.
    Baby

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  6. Happy to 'hear' from you and think of you all, hoping things are well.

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  7. Think of you all often, and check your blog every few months... Thanks for the update! Continued prayers ~ LoVe & (((HUGS)))

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  8. so glad you are back! Continuing to pray for you!

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  9. Hello! I check in every now and then and was happy to see a new post! Thanks for the update! We are still here!

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  10. Hi nice to hear from you again and to know that things are moving on in a positive way. I have followed your blog for years and have been wondering how you all are xxx

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  11. I was also pleased to read your updates. I think we all understand your life is full so blogging has to be secondary in your life. We will be patient until your ready to share more about the wild ride you’ve all been on. Welcome Back

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  12. So glad to read this update and hope to read more in the days to come. Continuing to pray for your family.

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  13. I was so happy to see a post here. It's difficult, yet totally understandable, for those of us who followed you and your family for years and years, almost daily. Then POOf! You're gone, and we no longer know what you and your kids are doing. We felt like we were a part of it all, but we really weren't. Thank you for sharing now and then. Feel free to update us on Ella, Lucy and Jack when you have an extra minute. They once were part of our lives, too! We miss you all. Bless your family!

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  14. So blessed to read your update today! Thankful for the many answered prayers I’ve prayed over Lucy and your sweet family! What an awesome and loving Father we serve! Look forward to new updates! You have been missed!💕

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  16. You came to my mind today. I don't know why. We have no connection except Lucy was on a prayer list and I followed her journey on your blog. But here I am, avoiding laundry and house work by taking a leisurely look around Facebook and you're name came upon my heart and I wondered how you were. Yes, I thought of your daughter and family too, but you were first and I wanted you to know that. Enjoy all of the busy days ahead, the rush burns calories.

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  17. I still have you in my favorites folder. I checked twice a day on our girl updates and am glad you came back for a moment. Would love to have a detailed update on all of you! xo

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  20. I was watching a St Jude ad today and your family came to mind. I'm glad to see a new update on your family. I pray for you and will continue to.

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  21. I was so excited to get an update from your family. My daughter & I grew to love your family and consider you as our "family" even though we have never met. Because of Lucy & your family, my 10 year old daughter has fallen in love with the work of St. Jude. She makes it her mission to support St. Jude as often as she can. She started at 7 reading your blog with me & since then has raised money through collecting cans from people of our church and community to donate the money to St. Jude, running in the marathon, growing and cutting off her hair as often as she can to donate for children to have wigs, and wanting to take her birthday to the hospital to do a paint party instead of her traditional birthday party(unfortunately she was too young so had to move her "party" to RMH). Your family is inspiring and definitely has changed the lives of many of your followers & their families. Thank you for sharing & I am so grateful to hear the blessings coming from your home.

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  22. I pop in every now and then to check in and see how everyone is doing. All the love to your family.

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  25. I've been praying for your family since Lucy's diagnosis. I'm glad you are all still here. God bless you!

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