10.22.2014

You Did It!


Yes!  You did it.  We did it.  GOD did it!  Thanks to you the Go Lucy Go Foundation raised over $51,000 last week at the dinner and auction.  I am still in awe over what a wonderful event we put together.  There were many hours invested and lots of sleepless nights but we did it!



I owe a debt of gratitude to every person who gave of her/his time, to all the sponsors and to all the people who gave donations to the auction.  My list of thank you notes to write grows every day as I think about every single person who contributed.  God is so good and continues to provide.  The night was beyond my wildest dreams.

Thank you especially to Geoff Calkins and Brandon Roten for being our guest speakers.  Geoff has an amazing story to tell and Brandon had me in tears from the moment he started speaking.  He somehow managed to put into words every single emotion and fear that Erik and I still live with everyday.  I was speechless when he got through, and that doesn't happen very often.  I sat with my heart pounding out of my chest as he spoke.

Brandon spoke of "normal", something I've written a lot about on this blog.  What is normal anyway? Whatever it is, it's gone when you have a child diagnosed with cancer.  Goeff spoke of fried clams,  which was his "normal" when he was being treated for Leukemia as a child.  It all tied so perfectly together in a way I could never have imagined or planned.

But you see, that's what the Go Lucy Go Foundation strives to do.  We want to give every child, every family, a chance to be normal.  What ever little bit of normal they can find during this journey, we want to be able to give it to them.  We can't take away cancer and we can't heal their sick child.  We can't change their situation but we can try to help them find a ray of sunshine in an otherwise black sky.

Thank you for your support.  Because of you we will be providing lots of glimpses of "normal" in the coming months.

10.12.2014

Jack Turned 4

So much has happened since I last blogged.  It's a constant frustration that I'm sure many moms experience.  I so want to document every day of our lives, after all this is our living journal.  The problem is that if you really want to live every day there is hardly any time left to actually sit down and write about it.  Until I figure out how to find a balance, or hit the jackpot and hire a full time assistant, I'll just keep doing my best.

Jack turned 4 in September.  We celebrated by doing what he loves most.  Playing in a bouncy house on a wide open field with lots of room to run and be wild.  12 of his sweet friends came to play and we celebrated in Optimus Prime style!





Oh, this precious boy.  There are not enough words in any language to begin to express how much I love this child.  I still find myself questioning the timing of his birth, so close to Lucy's diagnosis and after we had tried so long to have him.  Even though I wonder I know in my heart that Jack was sent to be a source of love, purpose and sometimes a distraction at such a hard time in my life.  I am so grateful to be his mother.  He is so full of energy, determination and love.  Jack gives the biggest and best hugs and when he sets his mind to something there is no stopping him.  I joke and say that I always wanted a house full of boys but clearly God knew best.  This one keeps me on my toes every minute of every day.  I'm quite sure I couldn't have handled more than one of him!






I'm not sure how I ended up with no pictures of Erik's parents but I promise they were there.  The birthday weekend was so chaotic that I couldn't have made it without them.  Jack wasn't too worried about his family being at his party but it meant the world to me.  We have been blessed with two wonderful sets of parents and amazing siblings.  Being all together makes any birthday more special.  

Until next time...you can find me living life and loving this little boy named Jack.   

10.06.2014

You've Got to Read This



Have you bought your ticket to the Second Annual Go Lucy Go Dinner and Auction?  Well, if you haven't you better do it quickly!  The tickets are going fast and we want you to be a part of the event.

Last year's event raised more than $50,000 for The Go Lucy Go Foundation and LeBonheur.  This year's dinner and auction is set to be even more exciting than last year.

Guest speakers this year include Geoff Calkins, nationally known sports writer, and a special LeBonheur/St.Jude family who will be telling their daughter's story.  We are honored to have Ava Roten and her family join us for this wonderful evening.

The night is going to be filled with dinner, live entertainment and a live and silent auction.  There will be over 100 items silent auction items and some really great live auction items.  In the live auction you can expect to see a vacation in Winter Park, Colorado, a beach vacation to Florida and like last year some really nice jewelry!

You will also have the opportunity to purchase specially create items that will actually be given to the children who are fighting brain tumors and other neurological diseases.  I promise you don't want to miss this night!

Most importantly, you have a great opportunity to support the work of the Go Lucy Go Foundation and the NeuroScience Institute at LeBonheur.  We hope to see you October 16th.

Click HERE to purchase your tickets.  

9.23.2014

Choosing the Joy

"consider it pure joy, my brothers and sisters, whenever you face trials of many kinds.." James 1:2

A couple of weeks ago Erik and I were asked to go speak with a new family who's 11 year old son was diagnosed with brain cancer.  It was such a raw, emotional experience.

We've spoken with several families and made friends with more over the past few years who were walking down the same path as us.  But there was something different about this family.  Something between us fused a relationship on a much deeper level than what should have been likely.  It was a level of intimacy that only a cancer family can share.  We laughed, we cried, we talked and then cried some more.

It was a surreal night and when we left after 2 hours, I was so sick.  I had a migraine, I was nauseated and all I wanted to do was sleep.  I had no clue that reliving such memories would make me so ill.  I'm so thankful for the friends we made and I'm so thankful for the opportunity I had to face some of my worst memories.  It was like looking a monster in the face.

One thing I talked to my new friend about was allowing herself to find joy in each day.  Let me tell you, walking the halls of a cancer hospital with a dying child is pure hell.  Seriously, pure hell.  BUT, joy is there.  You have to look. You have to make a choice.  You have to choose joy.

And can I tell you what that joy is like?  The joy you can find, the joy I have found, during our darkest days is the joy that is with me now.  It's God's way of whispering "you can do this.  I will give you what it takes to make it through the hour, and I will reward you with a memory that you will cherish forever. "  Isn't it amazing how God chooses to bless us in the most unlikely ways and during the most unlikely times?  But you have to be aware.  You have to choose the joy.

My new friend, her 11 year old son and their family have a very hard fight ahead of them.  I believe in miracles and our new little friend Mason is a strong fighter.  When I talk to her, which is almost every day, I pray over our conversation.  I pray that something, one thing, will encourage her.  That God would speak through me to help her find her joy in that moment.

Life is so temporal.  So many of us run through life passing quickly through the minutes in search of the hour.  We let the opportunity to live in a moment slip by us while we search out the grander event.  How do we not realize that life is chock full of "moments"?  Many us only experience those truly grand events a few times in our lifetime, if we are lucky!  Just think of all the memories, smiles, laughs and tears we can miss if we aren't careful.  

For so long I was forced to live in a world where day by day was all I possibly had with my daughter.  I was given a choice.  I could have allowed myself to get lost in sorrow and miss the sweet moments with Lucy that presented themselves every single or I could choose joy.  I can honestly say there wasn't a day that went by that I didn't find something to be thankful for.  There was always one thing I  could smile about at the end of every day.  And you know what, there still is.

Today was hard.  A discouraging report from Lucy's teacher could have easily sabotage my attitude.  Instead, I am choosing to go to sleep thinking about how amazing, simply miraculous, it was watching Lucy practice with the school golf team.  Who would have ever thought this would be possible?

I don't know what trial you are facing right now.  I have no idea what monster you will fight tomorrow.  I just want to encourage you to seek out joy.  It's there, I promise.  You just have to make up your mind to find it.

"Because you know that the testing of your faith produces perseverance.  Let perseverance finish its work so that you may be mature and complete, not lacking anything.  If any of you lacks wisdom, you should ask God, who gives generously..." James 1:3-5


9.13.2014

Its a Tradition


In typical Krull style, Ella's birthday has dragged out an additional week.  Ella and her best friend, Gracen, celebrated their 11th birthdays with a movie/slumber party.  Amanda and I took 15 kids and 5 adults to see the movie "Dolphin Tale 2" and then followed that up with a wonderful slumber party.




Instead of going to the movie, Amanda's husband Nelson stayed home and, unbeknownst to us, planned and prepared about 7 games for the girls to play.  I about died, seeing as I usually just tell the girls to go upstairs to play.  Apparently I need to up my game.  He really went overboard making sure the girls were entertained.  I'm still laughing when I think about how proud he was of himself.  It was pretty impressive (but don't tell him I said that.)

Games like rump-shaker, cheez-it pile on, cracker-whistle and the obligatory line dancing (think cha-cha slide.)  I left the girls in good hands and for the first time in several years did not host a party at my house.  I went home and slept in my own bed while Nelson and Amanda tossed and turned to the sound of little girls giggles and whispers until 4:00am.




Ella had a soccer game at 9:00 and in a very obedient move she actually went to sleep at 11:00.  Oh, I remember the day of staying up all night....and then feeling like crap the next day.  I sure couldn't do it now.  Speaking of being old and tired....stayed tuned.  Jack's birthday party is tomorrow.  If I wasn't worn out yesterday I'm sure 15 little 4 year olds will do it tomorrow.