Lucy update: Lucy is having some testing done over the next few weeks to determine why she isn't responding to her growth hormone injections. When they test her IGF1 levels she appears to be responding well, but there is no direct correlation to actual growth. As usual, Lucy remains an anomaly in certain health issues. While I am trusting fully that God's hand is on this situation I would be lying if I said I wasn't worried. As my friend said today "sitting in God's waiting room is a lonely place to be." He is right.
I also want to ask that you pray for our friend Mason. Doctors have told his parents that he is in his last days. He's 10 and fighting for every single day. My heart is broken for his parents, especially his mother. She has become a dear friend. As I write about my summer adventures she is preparing the eulogy for her son's funeral. There is nothing right about anything in that sentence. It's hard to know what to say to her. She knows that I have been there with Lucy--but Lucy got better. Lucy was healed. How can I even begin to relate to what she is feeling? The survivor's guilt is almost more than I can bare when I speak with her. If you read this Monica--I love you. I'm praying for you. I wish I could do more.
It was fairly chilly outside but I couldn't keep Jack out of the water. Thankfully we had dry clothes along!
I am thankful for every day that I have with these beautiful children. Every day I am reminded that each day is a gift. For that I am thankful.