Almost There

Thank you all for the encouraging words you left about our video.  It was definitely spoken from the heart.

My girls and I would like to say "thank you" to everyone who has donated to their school's St. Jude Trike a Thon.  The event is tomorrow and everyone is very excited.  If you have not made a donation and would be inclined to, we sure would appreciate it.  Helping Lucy and her friends at St. Jude is the best donation you could make!  Go HERE to donate.  (we are $600 away from meeting our goal.)

Lucy's eye appointment went well the other day.  Ok, "well" might not be exactly the right word but it could have been worse.  It seems that the generalized fatigue that Lucy deals with on a daily basis affects her eyes, too.  In the morning she appears to have almost perfect eyesight and then by mid day she has deteriorated rather quickly.  She is also having some problems with her tear ducts and that causes her eyes to remain very dry throughout the day.  Dr. H is going to try Lucy in glasses but she can't promise they will help.  She won't wear them all day, just only when she needs them.  Training Lucy to realize when she needs them will be the hard part.

Its interesting.  Lucy loves her hearing aids and has never complained once about wearing them.  When Dr. H said she was going to put her in glasses, Lucy was mad.  Like, really mad.  I'm hoping that if they help her see, like her hearing aids help her to hear, then maybe she will grow to like them.  As you can see below, she quickly changed her mood when I bought her an ice cream sandwich for lunch.  Yes, lunch.  Mom of the Year right here, folks!

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  1. Score!! Ice cream sandwich for lunch, 25 points! :)


    I love your eye patch!! It is cool! And, if you must wear glasses, you will have a lot of fun with them, really, they are so fashionable and I know you will look amazing in them. With so many styles and colours to choose from I'm sure you will find one that matches your personality.


  2. She's beautiful. If an ice cream sandwich is the worst "Mom of the Year Award" you ever receive then you've got it made, sister!! :) You are a blessing to so MANY, and it was exemplified in your video. Love to your family, and happy weekend!

  3. Hello - random blog reader here. I had to go to lots of regular Dr's appointments as a kid -- and sometimes my mom would let me have an ice cream sandwich afterwards too (even at 9am on the way to school after an 8am appointment). I still remember that little "consolation prize" even 20 years later. Go mom of the year!

  4. I got my first pair of glasses when I was just about Lucy's age and I was mad about it. At first I would take them off any chance I got (and leave them wherever, we had to go back to a lot of restaurants searching for them!), but now they have almost become a part of my personality. To me it seemed like it was one more thing kids could pick on me for and one more way I was different, it has to be 1000x more overwhelming to her. I say all that to say, kids are adaptable and I quickly loved being able to see more than I hated having glasses. One tip is to find frames she really loves, and that takes time. One of my favorite pairs of glasses looked like "a really nice science teacher might wear them". It made all the difference to be because that was what I wanted to be like. Lucy will look adorable with glasses!

  5. Kate,
    I really enjoyed your video. Don't feel guilty about giving Lucy an icecream sandwich for lunch. Considering her morning, I would have done the same thing, except I would have said a hot fudge sundae or anything that you want. I'm a sucker for when kids are hurting and I just want them to feel better.
    Keep hanging in there!

  6. Kate you are "mother of the year" we ALL would have done the same thing!!! BTW, LOVED THE VIDEO!!!!!!!!!!!!!!!! STILL PRAYING!!!!!!!!!!!!!

  7. Kate- I registered as a sprint runner with shipping because I live in Greensboro, NC. The t-shirt on my confirmation says youth size M, I need adults size M. Is it wrong or am I going to get the wrong size shirt? Thanks!

  8. I will pray that Lucy sees the benefits of her glasses soon and comes to appreciate them. And I think you do get Mom of the Year for the ice cream sandwich lunch. Being a good mom (or dad) is about throwing out conventions and going for what feels right sometimes. What is physically best for our child isn't always what they need. Way to go Kate for seeing what Lucy needed rather than what society dictates "a good lunch" to be.