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7.22.2015

St. Jude Tests and a Hike

You see, this is what happens.  When I finally get ready to start blogging again--life.  It always seems to sneak up on me-BAM!  School starts in 2 weeks (crazy, I know) so we are cramming in two last minute trips out of town and several trips to St. Jude.

Lucy update: Lucy is having some testing done over the next few weeks to determine why she isn't responding to her growth hormone injections.  When they test her IGF1 levels she appears to be responding well, but there is no direct correlation to actual growth.  As usual, Lucy remains an anomaly in certain health issues.  While I am trusting fully that God's hand is on this situation I would be lying if I said I wasn't worried.  As my friend said today "sitting in God's waiting room is a lonely place to be."  He is right.

I also want to ask that you pray for our friend Mason.  Doctors have told his parents that he is in his last days.  He's 10 and fighting for every single day.  My heart is broken for his parents, especially his mother.  She has become a dear friend.  As I write about my summer adventures she is preparing the eulogy for her son's funeral.  There is nothing right about anything in that sentence.  It's hard to know what to say to her.  She knows that I have been there with Lucy--but Lucy got better.  Lucy was healed.  How can I even begin to relate to what she is feeling?  The survivor's guilt is almost more than I can bare when I speak with her.  If you read this Monica--I love you.  I'm praying for you.  I wish I could do more.

This past Spring we took Ella to East Tennessee for a soccer tournament and while we were there we visited a lovely state park called Cumming Falls.  It was a nice 1.5 mile hike that dumped us out at the base of a beautiful waterfall.

 

It was fairly chilly outside but I couldn't keep Jack out of the water.  Thankfully we had dry clothes along!



I am thankful for every day that I have with these beautiful children.  Every day I am reminded that each day is a gift.  For that I am thankful.





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13 comments:

  1. Donna TJuly 23, 2015 at 9:26 AM

    So glad to hear from you. I'll be praying for Mason and his family. I can imagine your survivor's guilt feelings as I would probably feel the same way. I am praying you all get some answers from these tests and that Lucy will start to grow more. Love, hugs, and prayers always!

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  2. coopercrewJuly 23, 2015 at 9:50 AM

    Thrilled to hear from you again! Praying fervently for Mason and Monica! Prayers for the tests, fun and safe trips and a great school year! Thanks again for the up date.

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  3. AnonymousJuly 23, 2015 at 4:00 PM

    Oh my goodness! Bless your heart Kate! I too will be praying for this precious family as I too have a 10 year old grandson & cannot even imagine what they are going thru! So glad Lucy is doing sooooo well! :)

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  4. AnonymousJuly 23, 2015 at 5:49 PM

    Prayers for Mason and his family. What an awful situation for them to endure.
    Jack looks like he's grown a foot since the last picture I saw of him.

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  5. RondaJuly 24, 2015 at 6:13 AM

    The best thing we can do to quell the guilt of surviving when our friends have such deep, deep loss is to celebrate and live the lives we are left here to live. You are doing that well. Guilt does not get the final say in being spared what our loved ones have suffered. Living in joy with what we still have is the final answer. If you were your friends, you would tell them - Enjoy what you have today! We must do the same. I struggle with the "guilt" of being able to spend time with my children when my family members are no longer able to spend moments with their son. But I discovered that guilt was a true waste of precious time and robbed me of the joy God was giving me for the present. God bless you, Kate, as you continue to muddle through this valley of tears.

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  6. CarolJuly 24, 2015 at 9:31 AM

    You, have helped so many of us, to treasure each moment we have. You have helped so many, to turn to God and to thank HIM for HIS many many blessings. (10,000 and more!)
    Always have you and yours' in thoughts and prayers.
    Praying for your friend Monica and her precious son Mason, as well as her family.
    Thank you for your update...love to hear of them.

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  7. Amber RJuly 24, 2015 at 5:40 PM

    Good to hear from you again!

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  8. The Rohman FamilyJuly 24, 2015 at 5:50 PM

    You were in my town at Cummins Falls. It is so beautiful, and I'm so glad your family stopped to enjoy it.

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  9. child of GodJuly 25, 2015 at 7:38 PM

    I'm always covering Lucy in prayer! Promise, I won't stop!!

    <><

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  10. Aunt DotJuly 28, 2015 at 9:12 PM

    As always praying for Lucy and her family. Also praying for Mason

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  11. QPTJuly 29, 2015 at 10:19 AM

    !God bless the lovely kids!!
    Famous Nursery Rhymes for Kids

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  12. Eddie KnoellAugust 10, 2015 at 2:52 PM

    Indeed your family experienced is really great and amazing. Very inspiring to have a vacation while on the work :)

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