"Father fill my EARS with your beautiful love song and
soothe my heart with your comforting words." Tracie Miles
When Lucy was really sick I was able to write often. It was such a sweet respite from the numbness of the hospital room. Now, when I have time to sit and write (which is virtually never,) it seems again like a respite from life. It's a small distraction and one that I so appreciate.
Tomorrow Lucy goes in for her first ear surgery. I want to be optimistic but I think It is more practical to be realistic. Lucy hasn't had any functional hearing in her left ear for months. I kept holding out hope that it would return but I don't think that's in the cards. Especially now after the ridiculous ear infection that set in. This morning we had another scare. I went to wake her up for school and she didn't respond. I could see her breathing so I knew that she was alive (not to be dramatic, but seriously.) When I went over and woke her she couldn't hear me. She couldn't hear anything. Her right ear, her "good" ear, had no hearing. I was scared and Lucy was very confused. I can't imagine what was going through her mind.
But my goodness! Have I mentioned how determined she is? She insisted on going to school today, although we were about 2 hours late. It was very challenging and huge kudos to her teacher for being willing to try to manage today. Funny story: Lucy's teacher sent me a text around 1:00 to give me an update. It said Bad News: Lucy's can't hear anything. Good News: Doesn't seem to bother her a bit. At one point the teacher was trying to teach and Lucy was sitting at her desk just a hummin' away. She couldn't hear herself but the whole class sure could!
Listen, if I can't laugh at the situation I would cry myself silly. Our life is quite comical at times.
Last week we went on a short little trip out West and had a quick family vacation before surgery. We were very thankful the Dr. allowed us to travel so we made the most of our time away. Lucy was registered to ski with the NSCD, the National Sports Center for the Disabled. Last year she did the same but sat in a sit-ski which is an adaptive ski seat. This year, however, Lucy was determined to ski. We had not discussed this previously so I was more than shocked when this all came about.
I'll tell that story tomorrow (or the next day) because it's quite a doozy. For now, I'll leave you with this precious bundle of POTENTIALITY. 100 bonus points to any Southern Baptist who knows what song I stole that word from. The child that was determined to ski is my daily source of inspiration. She reminds that me no mountain is too big and that I don't ever have to take "no" for an answer. Lucy provides my daily lesson of courage and humility.
Tomorrow morning I will walk into the hospital worried, scared, anxious, doubtful and embarrassed at my lack of faith. Lucy, on the other hand, will walk in ready to tackle the challenge ahead of her. She won't look back but rather will run ahead to the finish line. She will be brave and courageous and will leave everyone she greets in awe. I love this kid. She is the very best.
"I am a promise, I am a possibility, I am a great big bundle of potentiality!" Always praying and always here if you need us. Much love.
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Thinking and praying for you all. It is amazing how much courage Lucy had. Can they do a cochlear implant down the road to help with hearing?
ReplyDeleteKate - I rejoice in Lucy's faith and courage. I applaud the Mother that taught her those things by her example. She doesn't see your fear - she only sees how you react.. Well done, Mom..
ReplyDeletePraying for all of you!
ReplyDeleteSong "I am a Promise". Love that song and it is so suited for your little miracle bundle of joy.
ReplyDeleteKeeping Lucy in our prayers today and everyday. She is quite the little fighter and continues to amaze!! GO Lucy GO!!!
ReplyDeletePrayers for all. Keep your faith God has this. Remember a little child will always lead us.
ReplyDeleteJust sang I Am A Promise yesterday in preschool music! What wonderful potentiality Luci is and can be for anyone!!
ReplyDeleteYou have such an amazing little girl! What a blessing she is. Praying for you all today.
ReplyDeleteI am hearing impaired and so is my father. We have shared this "trait" since I was 8 or 9 years old. We have had many laughs about our "trait" and continue to do so. We have used it to our advantage many times although I'm positive my parents about had it with me when I would take my hearing aids out while they were yelling at me about something. I pray that Lucy will continue to have a good attitude about her lack of hearing as it is very frustrating but I also pray that the doctors can restore her hearing. I pray that the surgery will go well and for you and your family to feel the many prayers that are going up for your Lucy.
ReplyDeleteI've been following Lucy's story for many years now, almost from the beginning. Thank you so much for allowing all of us to be a part of your "family". Praying for a positive outcome today. Please keep us updated. Prayers for Lucy, mom and dad, doctors and nurses:)
ReplyDeleteLucy is such an amazing girl!! I'm thinking and praying for Lucy and your family ❤️
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I'm not a Southern Baptist, but, I Am A Promise With A Capital P! You have such a bundle of POTENTIALITY there. God bless.
ReplyDeleteI'm sorry about Lucy's hearing loss. I loved the instagram pics of the whole family on the slopes. I'm glad you had a nice family vacation. While some things get harder for Lucy, it is nice to see her enjoying new things that were unavailable to her before. Praying for the best outcome.
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