Forgotten Post from Colorado

Oops!  I forgot to mention that we went on an excursion one day while we were in Colorado.  It was a beautiful drive through the Rocky Mountain National Park and we saw some amazing scenery.  The girls had a nice time and I just enjoyed doing "nothing" all day long.

Today's Recap

This is Maddie.  My precious niece.  I'd love it if you would pray for her.  She is in the same children's hospital as Lucy was and is a really sick little girl.  I don't have much to report, but she is having some severe digestive issues and feels like poo.  She is surrounded by the best doctors around and I am confident they are going to make her all better.  Anyway, I love her like crazy cakes and she (and her parents) could use a few extra prayers tonight.

In other news....

We are getting pretty excited about Easter around here.  We are doing all the usual things like egg hunts, egg decorating and picking out cute Easter dresses and outfits.  But more importantly, we are remembering the Resurrection story, talking about Jesus and trying to keep the Real Reason for Easter the top priority.

But holiday or not, there is regular life that must be tended to.  Today we took Lucy BACK to the hospital about her G-tube.  I'm ready to pull my hair out!  She's got the granulation again around her entry site and its very painful and bleeds.  She is also having trouble tolerating her feeds past a certain rate of infusion.  So we got some great minds together and tried to come up with a game plan.  As with most things along this journey, Lucy is the first patient at St. Jude to have this granulation issue.  Many patients have had the granulation, but none have had the recurrance like Lucy.  It is so frustrating!

The real answer is that Lucy needs to start eating, gain 10 pounds and then we can remove the tube.  Easy peasy, right?!  I only wish......While we were at the hospital Lucy got to help hang her art in E Clinic.  She was so proud and so were her Mommy and Daddy.

Ha Ha Ha

Yes. That is me. Rolling in the floor laughing at the stories you guys have been posting. They say laughter is good for the soul. I truly believe it. Today my spirits have been lifted.

Thank you all. We should do this again real soon!!

Be on the Lookout

If you see this sign around Tipton county or Millington, you will know that it's time to register for the 2nd Annual Go Lucy Go 5k!  

Oh, you've registered?  Great!  Be sure to tell a friend.  

I'm sorry, you haven't registered yet?  Oh, that's easy.  Just go here right now!  It's really that easy.  

See you at the race!!

A Little Honesty

I'm going to be honest here.  Today was a hard day.  At least this morning was.  At 8:20 am I had already called Erik on the verge of tears.  It's Jack.  He's just so, well, I don't know how to describe it.  He is so busy.  He won't sit still and he is into EVERYTHING.  Everyone tells me it just comes with having a boy, but I'm not sure.  To say each day is trying is quite an underestimate.  

I'm sure that if Lucy didn't demand (and of course deserve) most of my attention it wouldn't be such a big deal.  The problem is, I think Jack deserves that much attention too.  It really tears at my heart.  And apparently my sanity as well.  This morning I walked out of the playroom to go get Lucy a rag because she had just vomited and was seriously was gone 10 seconds at the most.  This is what I walked back into:

And then, when I turned my back to get Lucy dressed for physical therapy he pulled out all the wipes.  Shame on me I guess for leaving them within arms reach.  I can't put everything up on the mantel, though.

First of all, it scared me.  He could have hurt himself.  Secondly, are you serious??!!  Geez.  I guess that's the end of the changing table.  I'll have to find a place to stash diapers so that I can just change him on the floor.  I felt very defeated today.  BUT.  Let me just say that even through my frustration and tears, I'm so very thankful to be home with him.  I missed so much of his first year, I can't help but to kiss those chubby cheeks all day long.  I don't want anyone to think I'm complaining, but this is my blog and I just need a place to vent.

After my little meltdown I got Jack dressed and couldn't help but to giggle with delight at how cute he looked.  I mean, just look at him!

 And then these shoulders....oh so very kissable!

If anyone has any suggestions, or similar stories I'd be interested in hearing them.  Thanks for letting me vent tonight.