Dear friends,
Lucy's cancer is back. There is nothing we can do. We don't have a long time with her but we are determined to make the most of every minute.
Our only prayer is for mercy and no suffering. We have to protect Ella. She knows but we want her to be safe. Thank you for your love, support and prayers.
6.05.2012
We have moved
We have moved to LeBonheur and will be in ICU until further notice. Prayers are coveted more than ever.
6.04.2012
Quick Update
I don't have long but I wanted to give a quick update on whats gone on today. I will make it short and sweet.
Lucy has maintained a fever of at least 104 and often 104.5 for more than 18 hours. She is basically in a state of delirium from the fever which has, thankfully, not allowed her to fully appreciate the pain she is in. She is being treated with some big gun antibiotics for what we feel may be meningitis. We have been taken aback by today's revelations, which now include potential meningitis, an emergency CT scan, and an emergency MRI. She also had her g tube removed, her shunt tapped and will have to have her shunt removed and then probably replaced later this week (if we can wait that long.)
I don't want to sound overly dramatic, but things are not good here. We truly covet your prayers and ask that you keep Lucy in your continued prayers. She is very sick. We have a long way to go towards recovery. The road, as its been laid before us, is going to be long and possibly hard. Erik and I are devastated and very scared. I hurt for my other children and long to be a family again.
I will update as time allows. I know my faith has been tested before, and I'm not sure I can sustain much more, by my only hope is in Christ. I ask that you go before Him and beg for mercy for my precious child.
Lucy has maintained a fever of at least 104 and often 104.5 for more than 18 hours. She is basically in a state of delirium from the fever which has, thankfully, not allowed her to fully appreciate the pain she is in. She is being treated with some big gun antibiotics for what we feel may be meningitis. We have been taken aback by today's revelations, which now include potential meningitis, an emergency CT scan, and an emergency MRI. She also had her g tube removed, her shunt tapped and will have to have her shunt removed and then probably replaced later this week (if we can wait that long.)
I don't want to sound overly dramatic, but things are not good here. We truly covet your prayers and ask that you keep Lucy in your continued prayers. She is very sick. We have a long way to go towards recovery. The road, as its been laid before us, is going to be long and possibly hard. Erik and I are devastated and very scared. I hurt for my other children and long to be a family again.
I will update as time allows. I know my faith has been tested before, and I'm not sure I can sustain much more, by my only hope is in Christ. I ask that you go before Him and beg for mercy for my precious child.
6.03.2012
Do You Remember That Post From The Other Night?
You know, the one where I talked about "one day?"
Well this "one" day has landed miss Lucy in the hospital. We are at St. jude waiting for surgery tomorrow.
Her body is rejecting the Gtube and she vomited so much today that it came out. She has been leaking fluids into her gut which has been causing her severe pain.
It's been a horrible night and we sure would appreciate some prayers for our girl. We have some tough decisions to make before tomorrow. Something's gotta give. Lucy has suffered for too long.
Well this "one" day has landed miss Lucy in the hospital. We are at St. jude waiting for surgery tomorrow.
Her body is rejecting the Gtube and she vomited so much today that it came out. She has been leaking fluids into her gut which has been causing her severe pain.
It's been a horrible night and we sure would appreciate some prayers for our girl. We have some tough decisions to make before tomorrow. Something's gotta give. Lucy has suffered for too long.
6.02.2012
Ella's First Triathlon
Today Ella participated in our town's first annual kids triathlon. She swam for 50 meters, biked for 1 mile then ran for1/4 mile. I can't even begin to explain how excited she was about this event. To be honest, I was as nervous as a cat this morning. My adrenaline was pumping, so I can't imagine what Ella was feeling.
Yesterday, we spent some time driving over the course and practicing her transitions. When this morning came, 9:30 couldn't get here soon enough. In the first event, the 50 meter swim, Ella completely dominated. She was the first one out of the pool and had quite a lead on her bike. She lost a little speed when she had to ride her bike on a gravel path, but she managed to regain her pace one she hit the pavement again and led the pack the rest of the way.
In the picture above you can see a bit of me running with Ella. I am no runner (at all) but when I saw her round the corner with sheer exhaustion in her eyes I went down and met her and ran with her to the finish. She ended up with a 2nd place finish and I was absolutely amazed at her performance today. She really, really wanted a medal and bless her heart she got one! 2nd place in her very first triathlon.
The exhaustion didn't last long. As soon as she got her medal and some orange slices she perked right up and was able to cheer on the others as they finished.
Way to go sweet baby girl! Mommy and Daddy are so proud of you.
Yesterday, we spent some time driving over the course and practicing her transitions. When this morning came, 9:30 couldn't get here soon enough. In the first event, the 50 meter swim, Ella completely dominated. She was the first one out of the pool and had quite a lead on her bike. She lost a little speed when she had to ride her bike on a gravel path, but she managed to regain her pace one she hit the pavement again and led the pack the rest of the way.
The exhaustion didn't last long. As soon as she got her medal and some orange slices she perked right up and was able to cheer on the others as they finished.
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