Sunday, May 15, 2011

The Week Comes to an End and iCarly

We're outta here!

That's what we were saying around 1:30 today.  Hasta la vista! 

We were pleasantly surprised by Dr. W's decision to let Lucy go home today.  We found out that she could take her vitamin supplement by pill, so we did not have to stick around to receive IV meds.  It is wonderful to be back in our own home tonight.  We spent 4 long, heart-wrenching nights in the hospital during our first week of treatment break.  Not exactly how we had planned things.  Lucy continues to recover, but still has a ways to go. 

I don't know if anyone can fully appreciate how sick she was.  A few more days at the rate she was going and she could have been in a coma, completely without vision.  Seeing your child slowly lose their eyesight, while being fully aware of it, is agonizing.  I told Erik that while we have been dealing with Lucy's inability to walk well over the past 2 months, this was scarier to me than anything.  There are a lot of things you can do to accomodate a child who has trouble walking.  A child, or adult, who loses their eyesight is a different story.  I have to stop thinking about it right now.  It just breaks my heart.  Thank you dear God for continually laying your healing hand on Lucy. 



Lucy seems to improve about 10% everyday.  That means that since we were starting at about 0, it will take roughly 2 weeks (give or take a few days) until she is back to 100% with her vision.  That's ok though.  While we'd love an overnight healing, just seeing the gradual improvement is assurance enough.  Another thing we have noticed is that her walking is starting to improve as well.  There is no way to ever know how much damage her body received while she was depleted from all vitamins.  We are optimistic that her overall health is going to take off once she is replenished with the vitamins and calories she has been without for so long. 

As a great send off from the hosptial, Lucy got to meet the cast of iCarly.  The cast of VicTORIous was also visiting St. Jude.  She was so excited and I was surprised that she knew so many of the characters. 



Before we left we also had a surprise visit from my uncle and his wife from Middle Tennessee. 


Erik and I just want to thank you all for again for your prayers this week.  We are convinced that we witnessed a true miracle in the life of our daugther.  Heaven itself was being stormed with the prayers of believers all over the world.  God heard his children and answered in a mighty way.  We ask that you continue to pray for Lucy and all the other children suffering from childhood illnesses.  My heart is heavy tonight for the families who are in the same, or similar, situation as we are. 


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10 comments:

  1. Praising God that your sweet Lucy was able to go home and that your family is together. God is great and mighty!

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  2. Praise the Lord! Still praying for sweet Lucy! So glad to see her smiling again.

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  3. Praising along with you for the improvement in Lucy's condition. Wow, what a week for you guys. Continuing to pray that her strength and stamina will improve each day.

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  4. Continuing to thank God for the miracle of Lucy's restoring eyesight. So glad you were able to bring your sweet girl home today. May Lucy continue to take those baby steps to getting better, and feeling stronger, each day. Praying for your precious daughter, and family, has become second nature. It is a pleasure to help such a deserving and loving family. Take care of yourself also Kate. You have a lot on your plate right now, and need to be kind to yourself.

    Sending Hugs!
    A Mom-Mom in NJ

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  5. So glad you were able to bring Lucy home! I'm new to your blog, found you through another family that I found on Facebook. Will be thinking of your Lucy! I have a little boy named Keegan who was diagnosed with Neuroblastom when he was 3 months old, he's now 2 and doing well, but we still have a long way to go. Sending lots of prayers to your family!

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  6. At first, I prayed for Lucy once a day, then twice and then in recent weeks, I just pray for her every time I think of her, which is just constantly. We must all pray without ceasing. Blessings to all of you together at home. May each new day bring you peace and joy and lots of healing. Cynthia

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  7. Soo happy to read that you guys got to come home!!! And look at that smile on Lucy's face! Love it! Prayers for continued healing.

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  8. Praise the Lord that Lucy is home and having improvement! I love her precious smile! I must admit...I was quite nervous when little Lucy was going down hill so fast! The night I found out about the second MRI I sent out an email to all my friends begging them to pray, asked my church family to pray, and cried & poured my heart out to God thinking "is this going to be permanent?", but thankfully the next morning I got word about the vitamin! Praise God they found out about the vitamin before something much worse happened! The Lord sure has His hand on your little girl! I'm continuing to pray for Lucy and your whole family!

    GO LUCY GO!!!

    Love,Hope,and Prayers for Lucy,
    *Allison*

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