linehomedotaboutdotcontactdotlucy's storydotgo lucy go foundationline

5.25.2011

Life on the Home Front

Well, I'm quite happy to report that life continues to be very boring at our house.  Isn't boring just great?  It is for us!  As I think about "what's next" I have to admit that I become a bit emotional.  I've cried every day this week.  Once I was just having a normal conversation and mentioned chemo and started bawling.  Now that I think about it though, when did chemo ever pop up in a normal conversation of mine before Feb 23rd?

I'm trying not to dwell on it and we have some fun things planned for the next few weeks.  We might even make it to the lake for Memorial Day weekend!  We'll have to see how our doctor's appointment goes tomorrow.  Praying for good lab reports and a tiny weight gain. 

Ella's last day of school was today.  She is not officially a 2nd grader.  Wow!  How time really flies.  Monday her class celebrated by have a fishing day at the pond in front of their school.



Ella and her friend Carson


 Lucy and Ms. Beverly.  She will be her Kindergarten teacher next year.



Tonight we kept vigil as the storms that have wrecked havoc on the Midwestern states moved our way.  My heart just breaks as I hear the stories and see the pictures of the devastation in OK and MO.  Especially the city of Joplin.  My prayers go out to those familes who have lost everything.  During a lull in the rain, we stepped out on our front porch and saw this rainbow.  I don't care how old I get or how many I've seen in my life, a rainbow just fills me with such emotion.  What a tangible proof of God's love for us and His faithfulness. 


And the kids, of course, kept it real...


 Lucy, meanwhile, is making huge strides in her mobility.  She can now go from room to room unassisted (including the bathroom.)  As long as she is not attached to her TPN pump, she is pretty much free to go where she wants.  She still needs a good bit of help climbing the stairs, but we are working diligently on that.  Leigh, our friend and PT, provided some steps that help her get in and out of bed.  Lucy's bed was made for Erik and I when we got married by a friend, and it is taller than an average bed.  I am so proud of the progress she has made.  I think Lucy is too! 


Leigh and Lucy after PT (or PE as Lucy calls it!)


Leigh's son Benjamin was in Lucy's preschool class.  He insisted on letting Lucy borrow his bicycle game.  I'm so glad he did.  She has logged many a mile peddling her little heart out on this bike!


Leigh, thank you for what you are doing for us.  You will never know what this means to us.  We love you.

So, that's the scope on the Krulls.  We continue to covet your prayers for Lucy and the other children who are suffering from life threatening illnesses.  The stories are, unfortunately, endless.  God continues to bless us and we are so very grateful yet undeserving. 

I leave you with this parting verse....

"This sickness will not end in death.  No, it is for God's glory so that God's son may be glorified through it."  John 11:4

I am claiming this tonight as our victory verse.  I continue to pray that God will heal Lucy and make her whole.  But may His name be glorified through this season in our lives and may Lucy live to sing of His praises forever!


post signature

6 comments:

  1. Such a wonderful and uplifting entry. I am so glad to hear that things are going well, and "normal" in your home. Lucy looks terrific, and it was good to see her smiling face. That just brightens my day! May boring, continue to be the normal in your house, at least for awhile!! Praying for you all, and hoping that the storms do not hit your area.

    Sending Love and Hugs!
    A Mom-Mom in NJ

    ReplyDelete
  2. Love the top two pics of Lucy-so sweet and innocent, praying that you all get great news tommorow so you can get away this weekend!!

    ReplyDelete
  3. You are amazing, and although I do not know you personally I have a hard time believing that your family is undeserving. You strength brings me strength, and your courage brings me courage. Thank You!

    Prayers and love from UT

    ReplyDelete
  4. I bet that bike is great therapy without feeling like therapy! Glad life is boring. Must feel great!

    ReplyDelete
  5. I am so glad you hear your family is getting a breather!! Lucy, you look great! So nice to see some colour in your face again. :)

    Praying always,
    <><

    ReplyDelete
  6. I am so glad we saw you today--it did my heart good to see how awesome Lucy looks!!! We will celebrate your uneventful days with you and keep praying for lots of not much going on in your lives! Please let me know if you have any chemo questions, and I'm sure I'll hit you up for radiation info when we get there. Enjoy your weekend!!!

    --Sarah Good

    ReplyDelete