10.13.2011

Let Her Sleep


I found the above on Pinterest last night.  It was as if God was sending me a subtle reminder that I needed to be patient and wait.  Let her sleep.  It's ok.  Don't worry. 


And sleep she has.  Going on more than 65 hours of almost straight sleep.  She has awoken to use the bathroom and even woke up for an hour or so yesterday to try to play Wii with her Daddy.  (that didn't go so well.) 

Still running a fever, her body is just worn out.  Her hemoglobin will hold for a day then plummet.  Same for her platelets.  Her white blood cells seem to be holding for the moment at 0.3 (normal range is 4.9-12.9) and her ANC is teetering around 100.  She is receiving another blood transfusion today and will need platelets tomorrow. 

When Dr. P came around this morning we had a long talk about my growing concerns and he reminded me that the team decided to push forward with the full dose of chemo this 4th round, knowing that she was barely meeting criteria.  He even showed me the notes that Dr. G and Dr. T made that said "anticipate slower recovery than before."  It was good to know that this was not alarming to them.  I needed that reassurance this morning.  Because as I was praying with all my heart last night around 3:00am, fear was creeping in faster than I wanted.  Please continue to pray for Lucy.  She still has such a long way to go. 
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In other news.....

Our friend Justin is already off of his TPN and should be headed home next week.  Kellan returned home yesterday, too.  It will be hard not having my friends, my confidants with me.  Thank goodness for texting!  My sweet BFF Amanda spent the night with me, giving my dear mother a break.  Mom will be back soon and I am going to go have lunch with my new friend Melissa to discuss Lucy's Make A Wish Trip!  I am really excited about it, but I just pray Lucy is up to it by December. 

Jack came to visit yesterday.  Of course, he won the heart of every woman on this floor and kept us BUSY!  Ella went on a 3 day trip to St. Louis with Erik's parents.  She had a blast and declared that it as the "best 3 days of her life!"  Can't get any better than that, huh?  They even ran into my wonderful friend Nicole and her family at the City Museum.  She had a blast spending her last hours playing with John Owen, Jonah and Mary Claire.  I'm pretty sure my FIL was pretty glad, too.  I think Ella was wearing him out!  She's got one speed and that's full throttle.
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16 comments:

  1. Continuing to pray for a full recovery. It just amazes me how strong little bodies are. What a wonderful creation we are.

    Praying,
    <><

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  2. I found your blog on Lucy Lane's blog and have been praying for you ever since. Please know that your Heavenly Father knows every tear you shed, catches them and keeps record of it. HE CARES deeply for you and Lucy. I pray for your strength and energy to continue to be the best Mommy possible to your dear little Lucy-girl.
    Most sincerely in Christ's Love, Julee (Bainbridge Island, WA)

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  3. Lucy is in my prayers as she fights through this last round. Praying for complete healing and that she will be able to live life to the fullest! You are an INCREDIBLE mother.

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  4. what song in playing on your blog? Its a wonderful song.

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  5. What a small world! We were at the City museum yesterday as well. My hubby & son ran into Nicole (atoka's librarian, I'm assuming?) my son knows her from Atoka Elem. We had a blast too.

    Continuing to pray for sweey Lucy. I cannot imagine how tired her little body is.

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  6. The City Museum is quite possibly one of the best places on earth! I was there for a big even last year. They rented the museum for a bunch of clinically inclined PhD and MD students. My friends and I left with bruised knees, scraped elbows, and dirty jeans. Never thought I'd go to a conference dinner and end up going home dirty! We had a blast, and we were all in our late 20's and early 30's!!!

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  7. Immanuel Lutheran Church has several prayer warriors for you, including 2 bible study groups meeting tonight who will lift Lucy, you, Erik, Ella, and Jack up tonight! Your stark in-your-face example of what it means to love God ALWAYS is strengthening and energizing believers to accomplish His will.

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  8. We are continuing to pray for Lucy and the rest of you. That you will get the rest you need so you will have the strength to go on. Precious Lucy's body certainly needs this rest after all it has been through. I will specifically pray that her energy returns quickly and that she will be healthy and full of energy by the time her Make A Wish trip arrives.

    Heather Houston

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  9. Bless her heart and bless all of yours.

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  10. Dear Lord, Thank you for who you are. Lord you hear our prayers for Lucy. You are the great healer. Father, would you please place your hand on Lucy and heal her tiny body? I pray for her parents, siblings, doctors, nurses, etc. please father give them the strength they need to proceed. Lord we love you and thank you for what you have done so far even if its hard to understand. Father, I ask for rest and comfort tonight for Lucy and her family.

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  11. Hey Kate! Just a sending a quick note to let you know that I am praying for Lucy and you all every day. God Bless.
    Laurie Suriff(WCC)

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  12. praying, praying, praying for her healing during all this rest. go sleeping beauty,go!

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  13. Still praying even though I haven't made a comment for a while. I read your blog almost daily and say prayers for Lucy and you all every time.

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  14. Kate - I've been following your blog for almost 9 months. I hope you don't mind, but I felt compelled to post about your blog on mine. I don't have a million readers, but there are a few, and I figured a few more prayers for your dear family can't hurt.

    http://wanderinglili.blogspot.com/2011/10/blogwworth-sharing-baltimore-md-october.html


    I wish there was more I could do.

    With Love in Christ - Lili

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  15. I pray for y'all every night and will continue forever. I am so sorry that little Lucy ia not doing so well right now but I have all the faith in the world that God is just wanting her to rest for now bc when she does recover she will be just like Ella and be full throttle ;) Your little angel has amazed me since day one and continues too every day. She is a very strong willed girl but sometimes even the strongest need a little more rest than usual. So don't be scared, don't let the worst creep into your mind bc she WILL be just fine... I have had a feeling about her since I first found out she had cancer. God has his hands on that little angel every second of the day! God bless y'all

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