7.06.2011

Covers

Lucy's ANC dropped again last night.  She's at 100 now.  I was in tears by 7:30 this morning.  I don't understand what's going on and it is so very frustrating.  Everyone, including the docs were almost positive we would be out of here by today.  We are waiting on the docs to make their rounds and try to give us some idea of what is happening to Lucy's cells.  Please say a prayer today that things would turn around for her and her cells would start to come back in.  We both feel like caged animals here and I've been fortunate enough to get out.  My poor baby girl has been in the room for over a week now. 

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After Lucy gets out of the bath we wrap her tight in warm towels, blankets or a heating pad.  She is a like a newborn in a lot of ways.  One in that she has a hard time regulating her body temperature.  Being outside for just 2 minutes is enough to make her miserable and getting out of the bathtub sends her into a freezing fit.  We have to do her dressing changes 3 times a week, so we let her get nice and toasty before we start.  She's such a funny girl!


And here's a gratuitous picture of Jack....just because he is so darn cute..


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11 comments:

  1. oh my goodness he looks so growny in that picture!!! praying that the doctors find out what is going on and that they can fix it ASAP!!!

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  2. Ugh! That's so frustrating! I'm hoping for miracles!

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  3. Praying for Lucy....and Jack is such a sweetheart, all your kids are, I am sure this is taking it's toll on Ella, prayers for Ella, Jack, Yourself and Erik to help you all get through this very trying time...

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  4. We are praying her counts rise soon! We became St. Jude Partners in Hope today in honor of Lucy. She is touching so many lives!

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  5. I just came across your blog for the first time today and I want you to know that we have added your beautiful daughter Lucy to our family's prayer list. Thinking of you today...

    Becky

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  6. Poor girl! I feel so bad for Lucy and you, but you have to admit she looks really cute all bundled up like that. :) Jack is adorable too.

    Always praying,
    <><

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  7. Jack looks like a Mini Lucy to me. So stinkin cute!

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  8. As I was walking on the beach this morning I was praying for this sweet girl and your family as you go through!! Just continue to look up and pray! I am so sorry for your hurt! I pray for healing!!

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  9. Praying that Lucy's ANC comes up soon and she can get out of that hospital! I was so disappointed when I saw that! I'm praying for y'all!

    GO LUCY GO!!!

    Love,
    Allison

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  10. I am praying that God will send HIS healing power down on little Lucy and she will turn that corner TODAY! Hang in there...OUR GOD shall supply ALL of our needs!

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  11. I am so sorry that her numbers aren't reacting like you hoped...I pray the docs have some answers for you & tomorrow's numbers look better.

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