(All the cool kids wear masks)
Yes, it's been quite a day around here. Lucy had another horrible night last night. She was up 6 times. 3 vomiting and 3 for the bathroom. I adminstered IV antibiotics in the middle of the night and took an hour. Needless to say we were all thankful to sleep in a little late this morning. After we had been up for about an hour or so, Amanda noticed something different about the bulb of Lucy's shunt. It had completely inverted. I absolutely freaked out. I sent a text out to our neurosurgeon's assistant and within 15 minutes Xrays and a CT Scan had been ordered. We made a mad dash to get dressed and showered and headed to St. Jude. My stomach stayed in knots for hours as we waited on the results. Her shunt had corrected itself, but I knew that what I saw was not normal.
Around 4:00 this afternoon we got the call that everything looked ok---Praise the Lord!!! We still don't have an explanation and can't explain the forceful, almost violent vomiting in the middle of the night. Luckily we will get to see our Neurosurgeon on Thursday and I look forward to getting some answers. Please say an extra prayer tonight that we won't have any more problems with her shunt. I've aways been scared of it for some reason and today's incident did not help. If she were to need surgery to correct any kind of malfunction it would be so dangerous right now. With her immune system so compromised right now, she would not have the ability to fight off any germs she might pick up in a hospital or in the OR. Ugh...I can't even think about it.
"God, please protect my sweet baby girl. She is already going through so much."
Praying. Thanks for keeping us updated with specific prayer requests
ReplyDeleteAlready prayed that her shunt stays perfect and that you all get a wonderful night of sleep. Stay strong sweet Lucy!!! We are cheering for you!
ReplyDeleteMay the Lord continue to bless you and your family! Sending prayers from SLC, UT.
ReplyDeletePraying for you all. Poor sweet Lucy, pray that you will be healthy and strong soon. I hope that you have no more complications or set backs.
ReplyDeleteExtra big prayers coming your way
ReplyDeleteJust prayed that she would have no shunt issues! Even though I usually dont comment, I read you blog and pray for Lucy and your family every single day!!!
ReplyDeleteEven though I do not know you personally I get great strength from you and what God is doing in this very trying time in Lucy and the family's life. I pray daily and know for a fact that God has his hands on Lucy, your family and the Dr's who are treating Lucy. Continue with your fabulous blogs. I pray that Lucy continues to be healed.
ReplyDeleteGayla Ames Iowa
I didn't look at your blog at all last night, but felt that I needed to pray for Lucy and your whole family when I woke up this morning. So sorry she had such a miserable night! I will pray for her throughout the day as she comes to mind...she is one brave little girl!
ReplyDeleteSandra
Poor Lucy!
ReplyDeletePraying and praying.
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Hi Kate, I am the minivan mama of 3 boys and peds OT too. I have been following your blog since shortly after Lucy became ill-came across it by chance. Please know that I admire your strength and courage as a mom and that I keep Lucy in my thoughts and prayers each day. What a beautiful family you have. Just wanted to let you know that there is family from Louisville out there thinking of yours. Take care and know that we are sending prayers up for a good night's rest and healing for your little girl.
ReplyDeleteAly
Praying so hard for sweet Lucy.
ReplyDeleteGlad everything was okay. If it makes you feel any better, my sister had two major surgeries while in treatment and she came out of both with zero infection. I know it still scares you to death, it scared us too, but it is possible!
ReplyDeleteAlways praying for Lucy and your sweet family!!
ReplyDeleteOh Lucy sweet baby, there are so many of us praying and standing in the gap for you. You are my hero sweet girl.
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