4.15.2011

Friday

Erik rode with me today for Lucy's treatments.  She had PT at 9:30 and then our weekely meeting with Dr. K, the world's most wonderful radiologist.  Right now she is back for CT scan, MRI and then RT treatment.  I specifically wanted Erik to be here today because its a day full of waiting.  Waiting is still the hardest part of this whole game. 

One thing that has been on my mind (and nightmares) is whether or not Radiation is actually working.  Last weekend I had this recurring nightmare that after 33 treatments, all of Lucy's tumors were still there.  Since then I have been asking God for a clear audible message that Lucy was going to be ok.  I don't want any room for misunderstandings.  What I really want is a message of Biblical proportions in which God himself comes to me on the street and says "I am going to heal Lucy."  While I know that is probably not going to happen, I am looking and waiting for a verbal affirmation.  I won't go into details, but I think I might have gotten one recently.  I'm still trying to decide if it was God or me just wanting to hear something--making something more than it really is.  Either way, God continues to bless me with a peace that passes all understanding. 

Todays scans are preparing for the boost portion of Lucy's treatment.  This part is really important beacuse this is where they have the most effect on tumor reoccurance.  They will specifically target high doses of radiation to the tumor sights in her head and her back, areas where you would typically expect to see a regeneration in the future.  Between the boost and our constant petitions for complete remission, we expect God to do some great things in Lucy's life.

A part of this process is that whole waiting thing I was talking about.  The way radiation works, it is a cumulative effect that might not be seen to complete fruition until weeks after treatment.  In fact, they will not do a full MRI until 4 weeks after treatment ends.  During RT you can have a lot of swelling that can actually make the tumor look worse rather than better.  Dr. K put it like this; If you cut your hand there is a process that the body goes through to heal it.  At one point it will look red, inflammed and irritated.  Over time, though, it will heal and look like new.  This whole process is even longer in the brain.

So we will wait, in constant prayer and supplication, for the Lord to heal Lucy and her sweet little body.  We will continue to take joy in the little things in life and praise God for everyday we have with all three of our children.  What a blessing they are to us and we feel so overwhelmed with gratitude to be their parents.  Here are some picture of Lucy's day. 





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29 comments:

  1. Oh that thumbs up picture melted my heart! We are still praying like crazy for sweet Lucy!!!!

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  2. This is my first post to you and your family, although we have been praying for Lucy since I found your blog. My boys, 6 and 4, never forget Lucy in their nightly prayers and it melts my heart to see the Lord working in their little hearts.
    Today I just want you to know what an inspiration Lucy is to all of us. She is a beautiful little girl and to see her smiling through all she is enduring is a lesson to us all.
    We will continue to pray for her full recovery. She has captured the hearts of my boys and they think she is just the "coolest"!

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  3. I love the picture of her using her walker. You can see determination and that look of pride that tells you she is accomplishing something big. I am amazed by your faith, keep listening for those signs from God - I am sure they are there. You can see in Lucy's eyes that she is a fighter. She will fight and beat this cancer beast.

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  4. Thumbs Up...What a priceless picture!

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  5. Good luck. Lucy looks beutiful!!! I will be praying for her.

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  6. Hi Krull Family -
    You don't know us, but we received your site from our friends at Le Bonheur. We are from Oklahoma, and our daughter, Allyson, is a patient of Le Bonheur and St. Jude. Allyson has a brain tumor as well - she's been fighting it the past 3 years. She was 4 when she was diagnosed.

    Reading your posts brings back so many emotions for me. Dr. Boop and Dr. K are also Ally's doctors. Both are amazing individuals and they do everything they can to help the sickest of patients. I know that Lucy is in the best place possible and is getting unbelievable care.

    I know you don't want to be where you are...it sucks to put it mildly. It's not fair and you're right, you did not sign up for it. I'm right there with you. The past 3 years have been hell for us as well - and we're always wondering "why us"...but God is revealing that answer to us slowly and in His time. I just wanted to let you know that you are not alone - hang in there!

    We are praying for Lucy and the rest of your family. Lucy's smile is infectious...she looks as if she can take on the world. I'm confident she will come through to the other side of this cancer journey just fine! I know there will be bumps and turns along the way that you're not expecting, but the victory over cancer is worth it.

    Thinking and praying for you -

    Michelle Perry
    Bartlesville, OK
    michellelperry@sbcglobal.net

    www.caringbridge.org/visit/allysonperry

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  7. omg. the thumbs up one got me!! what a fighter. she kooks so happy and positive and string. she will beat this!!

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  8. With our without hair Lucy's face radiates personality and love...she is an absolutely gorgeous little girl.

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  9. Kate-we don't know Lucy but my husband & I pray for her every night. And we pray for exactly what you asked in your post from a couple of weeks ago-that Lucy will be cancer free. The pictures of her smiling are just beautiful. She is one adorable little girl.

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  10. Lucy has the most wonderful smile! We are sending up prayers every night that you find His hands on your shoulders, giving you calmness.
    Many blessings from the Grants in Massachusetts

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  11. I LOVE the picture with her doing the thumbs up sign!

    Go, Lucy, Go!!

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  12. Love Lucy's smile in these pictures.

    We continue to say extra prayers for your family.

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  13. She's so beautiful! But you already know that! :)

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  14. Lucy looks like she's doing awesome with her walker! Continuing to pray for full healing (both physical and emotional) for your family!

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  15. Oh Kate! I love the thumbs up! It says (to me) "I'm good! No worries! I know my hair is gone but by spirit and my will power is there!" She is one amazing little girl and each time I read your blog I am speechless at the work GOD is doing!

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  16. I love the look of determination on Lucy's face in the last picture! Her strength is amazing! I continue to pray for all of you.

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  17. Calling out to God on behalf of Lucy and praying for you too. ((hugs))

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  18. She looks SO incredibly strong & confident in that last picture. The world is yours, Lucy! Praying for you, beautiful girl...

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  19. What precious pictures of BEAUTIFUL Lucy! I love her smiles and the "thumbs up" pic brought tears to my eyes.....this Lucy, this precious, innocent child of God....SHE is my inspiration!!!!!!

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  20. Thumbs up back atcha, Miss Lucy! You are a rock star!

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  21. What a beautiful smile in those pictures!! Truly breathtaking! Love the thumbs-up and the one of Lucy using her walker. Wow, the look of determination in her eyes! We continue to pray for Lucy and your family!

    “In our lives there is bound to come some pain, surely as there are storms and falling rain; just believe that the one who holds the storms will bring the sun.” Thank you God for this beautiful weather, and for always bringing us through the storms...

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  22. Love the thumbs up pic! Lucy looks so happy and in the last picture, she exudes pure determination! Go Lucy!

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  23. May God be with you in this process. That your hearts will be filled with HIS PRESENCE! Praying for you to hear from God. I believe that HE WILL SHOW YOU. PRAYING FOR IT!

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  24. Not sure if you listen to country music or not but I wanted to share something with you. The band Rascal Flats has a song out called "I will stand" every single time I hear this song I think of your sweet family and I say a prayer for you. The song reminds me of you and your Husband battling for Lucy and standing up for her when she needs you. Listen to the song if you get a chance and if not everytime I hear it I will say a special prayer for you!

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  25. THUMBS UP TO YOU LU! Go Get'em girl! ♥ XOXO

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  26. I love the thumbs up picture! Lucy is beautiful! We continue to pray for you and your family over her in SC!!

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  27. I continue to pray for Lucy and for GOD to heal this precious little girl that has come over all of us!!! I know our god will heal her and keep you gusy strong you are great parents!11 God Bless!

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  28. Pray believing. I believe God does speak and speaks loudly. You are listening. You will hear. Pray believing--that is what He told us to do. Blessings to you all. Cynthia

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