For those keeping up the blog, you all know that we were discharged from Le Bonheur Monday morning.
We went straight to St. Jude for Erik and I to learn how to administer her IV antibiotics. We finally got home around 5:30pm. Things were going great...until. Until Lucy started running a fever. Being new to this whole cancer thing, I gave her Tylenol and did not call any doctors. Big mistake apparently. Lesson learned!
I don't think I got a moment's sleep watching her and checking her temp every 30 min. Seriously. I was a nervous wreck. We did not have to report back to St. Jude until 11:00 the next day, but I had planned on getting there early so that she could be assessed for the fever. While I was in the shower, Erik called me on my cell phone (from the other room) to tell me he had been very sick all night. Great! Another one down with the stomach virus. Even though he could hardly move, he had already called me mom to get her prepared to go to Memphis with me. (My mom had kept Jack for me that night. I know it was our first night home, but he had gotten his 6 month vaccination that day and was quite irritable. I hated to send him off, but in hindsight it was a great decision).
Even though she was sick, I think Lucy enjoyed her 12 hours at home. Just seeing her family and enjoying the sunshine was such a blessing.
Long story short, Lucy was admitted-much against her will I might add- yesterday for observation. She kept a 103.5 fever all night long and kept us on our toes. Her blood pressure dropped at one point and her heart raced in the 190's. I am happy to report that at the moment she is resting well, her fever is finally starting to break and she is comfortably asleep in her Daddy's arms. Erik is no longer in quarantine so he is curled up in the recliner holding his sweet baby girl.
My prayer this morning is that whatever is causing Lucy's fever will manifest itself boldly and the doctors will know exactly how to treat it. I don't feel defeated today, just frustrated. I know God will sustain us and this too shall pass.
"Come to me, all you who are weary and burdened, and I will give you rest.
9 hours ago