Forgot to Add.....

So, after that long post, I forgot to give an update on the spinal fluid leak.  As I mentioned last night, Lucy started leaking spinal fluid from the hole where the drain had been.  This was not a total surprise, as we were told this might could happen, but we definitely had hoped it would not.  She was placed on flat bed rest last night and the leaking stopped.  While she was in for the CT scan and sedated this morning, Dr. S came in and placed a small stitch in her back to close things up.  Well, wouldn't you know it?  No longer than 2 hours she was leaking again.  He little panties were soaked at the top.  This time we think she is leaking from the place where the needle was inserted to put the stitch in.  She is back on flat bed rest until tomorrow.  If she is not leaking, we will proceed with our jam-packed day of appointments and consultations.  If she is leaking, then she will be on bed rest tomorrow and during her MRI under sedation on Friday they will take out the stitch and redo the whole area.  The docs still feel as if this not going to be a huge setback, but just something we have got to get under control. 


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A special thanks to Emily and Zach Cook and their Sunday School class at Bellevue Baptist Church.  In an effort to minister to one of the many needs of the families on the 7th floor, a dinner was planned and boy did they come through.  We fortunately/unfortunately had to miss out because of our sudden transport to St. Jude, but I heard there was enough food to feed an army.  When Lucy gets well, I will forever be an ambassador for Le Bonheur and the many needs of the families who are serviced there. 

One quick story....I got a call late last evening saying that the families were just so grateful for a nice home cooked meal and that many were actually moved to tears.  There was one sweet young lady who approached the social work staff on the floor, asking if it was ok if she made a plate for the grandmother who was staying with her.  Come to find out, the grandmother had not eaten for 2 days because she had no money.  This is the type of situation all over that hospital.  This being said, if you ever want to know more about how you can help out at Le Bonheur, please contact me and I will get you in touch with the right person.  God has placed this hopsital on my heart for a reason and after I get my Lucy well I am going to run with it!  If He wanted me to be an advocate for the hospital, I wish he would have just sent me an email.  I didn't need to be there for 21 days to figure it out.....or did I?