3.15.2011

Status Update

I hope for a longer post later but things have been wild today.  We are at St. Jude trying to get adjusted to our new residence.  I have so much to share/write that my head is exploding! 

We appreciate all the prayers for Lucy today.  I've got one more to ask...Lucy just started dripping spinal fluid again.  We are praying that her incision just needs a stitch, but we know all too well that it might get us right back to Le Bonheur for a shunt.  We might not know for sure until the morning.  Please say an extra prayer tonight. 
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33 comments:

  1. I've been following Lucy's story for about 2 weeks now. I can't even begin to imagine what you or Lucy is going through but I want you to know that Lucy is on my mind constantly and she has lots of prayers coming her way.

    Lots of hugs!
    Brandy

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  2. Praying and praying for you all and of course for dear Lucy!

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  3. I am glad you are finally there...that means you are one step closer to coming home. I am praying that Lucy becomes one of the survivors that St Jude will talk about for a LONG time, once the treatment begins. I pray that God will begin to heal in a way that the hospital staff would shout, "Holy, Holy, Holy...is the Lord Almighty," and there would be no doubt in anyone's eyes that she is a walking miracle. Things happen for a reason...we just have to believe. We have not stopped praying and we will continue to intercede for Lucy. Once again, I have seen miracles just happen...

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  4. Not sure why it did not put my last name in the above post...Lori Bolton

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  5. Praying for healing in her back tonight and good news in the morning.

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  6. Well said, Lori!!

    I'm praying, praying, praying!

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  7. praying for sweet little lucy everyday. i believe in a big God who does big miracles. and i am believing that he is going to do one for lucy and your family. blessings!

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  8. I pray for your family everyday. My nephew was diagnosed with cancer at 5. I wept and raised my hands in worship the day we had a big celebration for the end of chemo. He is now 11 and running around like a crazy man.

    As a mommy of six, my heart aches with you and my prayers go up for you.

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  9. So glad you are at St. Jude! In our devotions the other day I was reading about the Israelites when they came to the Red Sea! All hope was lost! And what did God do? He opened the sea, of course! Our God is the God of the impossible! PRAYING!!!!

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  10. Praying extra prayers tonight. Go Lucy Go! God is bigger than cancer & will heal you! Praying for all of Lucy's family as their world has been turned upside down, yet their faith remains unshaken. Truly inspiring!

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  11. Praying and Trusting HIM!!! Love you all!

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  12. We've never met but my family prays for your family every day. (My son's teacher is a friend of yours, Kate.) I'm so glad you are finally at St Jude where Lucy's healing can begin. We will continue to pray for your sweet Lucy, as well as your other precious children and the rest of your family. Go Lucy Go!!

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  13. Hi Kate--
    I've been reading your blog for a few days now and wanted to write and let you know I am praying for Lucy and you and your family (you are such a beautiful family by the way).

    My heart just aches for you. I cannot imagine what you are going through.

    I'm thinking of you and am sending many warm hugs all the way from Las Vegas. xoxo

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  14. Hi Kate..So glad you are sort of settled in at St. Jude. It's time to get down to the business of getting rid of this stuff, right? I'm praying that it only takes a little stitch to stop the fluid leakage this time. I'm praying for Lucy and you and the rest of your sweet family! Thank you for taking the time to share your Lucy with us thru your blog. Hope you & Lucy have a restful night!! In HIm, Laura

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  15. So excited to hear that you are at St. Jude's! Asking God to heal your litle Lucy's spine with His kiss.

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  16. So glad to hear y'all were able to go to St. Jude today. We are praying fervently for God to heal Lucy's back completely!

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  17. I found out about sweet Lucy a couple of weeks ago from several friends' Facebook posts. My four children (ages 2-7) and I have been praying for her and for your entire family. My husband has been an engineer at St. Jude for 10 years, and your situation is near and dear to our hearts. I have three little girls and then a baby boy, and your family reminds me of ours in so many ways. Lucy even looks alot like my 5 year old which had me sobbing the entire time I read your blog.

    We too faced a very difficult medical diagnosis in 2006 and spent several days in LeBonheur with our then 3 year old. I know a fraction of the emotions that you are going through, and my prayers are that you will stay strong throughout this and rely on God moment by moment. He will pull you through this when nothing else can and when no one else understands.

    We will continually be praying for you and your family as Lucy gets better and stronger every day!

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  18. I read this on Sally Cleek's caring bridge page and wanted to pass it along to you. (She is pregnant with her first child, Drew, and is undergoing chemo for breast cancer). I thought it was a good word and I hope it gives you some encouragement today.


    One thing I wanted to share with y'all that I read the other day was from Psalm 63:7,8. "For you have been my help and in the shadow of Your wings I sing for joy! My soul clings to You. Your right hand upholds me." The sweet thing about that verse is that we find joy in the shadow of His wings but shadows are usually dark places. In fact, a mentor of mine, Mrs Hardy, pointed out to me once that the closer you are under His wing, the darker it is. I was struck by that as I read that verse. In our darkest places, we are often closer to the Lord than in the light and even there we can have joy! Trust me, I have shed more tears in these last 3 months than in my life and yet, my heart rejoices in the way He has carried me and comforted me. I pray you know His nearness today too--in light places as well as dark ones!

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  19. Praying for Sweet Lucy and Family

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  20. Saying a prayer this morning!!

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  21. Prayers from Canada. I've been following Lucy's story for about a week now and you have one very resillient little girl.

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  22. Praying specifically. Thank you for keeping us up to date so we can pray.

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  23. I'm new to your blog so I haven't read up on everything. But please know you have another prayer warrior on your side. Thanks for giving specifics for prayer. While I know we have wonderful doctors and nurses to work on us also know that Our GOD is the ULTIMATE physician. Praying for you, your family and everyone who walks through Lucy's world!

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  24. Praying that improvements were made overnight! Keep fighting Lucy!!!

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  25. Praying for her and you everynigth, and thinking in Lucy every momento! GO LUCY GO!

    A big hug, and good luck!

    PIlar

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  26. Praying for your girl!!! God is Good, ALL the time!!!!!

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  27. Praise God! We are praying for all of you! I used to live in Memphis, a place VERY dear to my heart. I know a precious nurse at St. Jude named Morgan Hayes. We are following your journey and begging God to heal Lucy! God please continue to carry this family.

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  29. I pray everyday that lucy gets better! I read your post everyday praying that a miracle will occur!! God bless!

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  30. Kate and Eric,

    My name is Beth Perkins and I am the director of the Southern Region of ALSAC (the fundraising arm of St. Jude). I first learned of Lucy during our recent KIX 106/St. Jude Radiothon. The number of partners in hope we received in honor of Lucy was short of amazing. I have been following your journey since. I am so glad that you have made it to St. Jude. It is a place of miracles, it is a place of hope.

    Please know that Lucy inspires us all - we will keep on doing what we do best so that you can focus on Lucy.

    Your strength and faith are amazing.

    Someone once said that when you walk in the doors of St. Jude, you can feel the hand of God. And it's true. I'm so sorry that your family is having to go through this.

    Peace and many prayers to you.

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  31. Just thinking and praying for you all!!!!!!! Yay for St. Jude transfer! I hope Lucy Love has had a lovely day!

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  32. Checking in on Lucy before bed. As always we will pray for Lucy and praise God for his mercy and compassion. I hope you guys are able to get some much needed res tonight.

    Krystena

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