3.09.2011

The Tides Turn...Again


Yesterday I was praising the Lord that Lucy had a good day and was smiling and talking.  Today we were pleading for her life.  Literally.  As I mentioned in my last post, I went home last night to be with Ella and Jack and pack clothes for what I thought would be tomorrow's move to St. Jude.  By the time I got all my chores done, it was 1:45 before I got back down to the hosptial today.  I knew as soon as I walked in the room something was wrong. 

On regular morning rounds, one of the doctors came in to talk with Erik about the pathology results from Lucy's tumors.  Without them, we knew two things. 1.  it was cancer.  2.  it had spread,  But what we did not know was how good or bad it was.  Only the pathology report would be able to tell us.  Although it was taking longer than normal to get her results back, we had not spent any time thinking about it this week.  But just like everything else in our lives right now, one conversation turned our lives upside down.

The doctor informed Erik that Lucy's biopsies came back showing she had Anaplastic Medulloblastoma.  It is the absolute worse kind of MB you can have.  There is virtually no survival rate.  Erik had to carry this burden all day by himself.  He did not want to tell me over the phone and did not want to scare me to death by making me rush back down to the hospital.  I can not imagine what agony he went through.

After he told me we spent the next 2 hours crying, screaming, cussing...all in a state of shock.  Our focus turned from how quickly we could get to St. Jude to do we even treat her at all.  We both agreed that if she had no chance of survival we should be more concerned about keeping her comfortable and not putting her through unnecessary treatments.  It was almost like one of those movies, or crazy sad books.  We actually started thinking in terms of our baby dying. 

While we were trying to process this news our nurse noticed that Lucy's back was wet.  Wouldn't you know it, she was leaking spinal fluid again.  Crap!  I swear it seems like Lucy can't catch a break.  In a whirlwind of events, neuro was scheduling an emergency surgery in which they were going to reopen her back, patch the hole where the tumor was removed, remove part of her backbone and then resuture her with a temporary drain in place to help with the build up of spinal fluid. 

While we were waiting for them to come wheel her away for surgery, we were standing huddled over Lucy like she was already gone.  My parents were with us and we were all crying.  Trying to comprehend the days events was just impossible.  Then the phone rang.  Erik picked it up and slammed it down to make it stop ringing.  Luckily, they called back.  It was another member of Lucy's treatment team with news that would rock our world once again.  Apparently pathology had given the doctor the wrong report and Lucy did NOT have the type of MB he told us earlier that day. Erik stood with the phone shaking, crying and trying to listen while I was saying "Thank you Jesus" over and over and over. 

Now please don't get me wrong.  Lucy still has a nasty cancer and has a long, hard fight in front of her but we know now that she's got a fighting chance to beat this thing.  We know it will be hard, but...Lucy is NOT a statistic.  She's Lucy!  And the statistics don't take into account our God.   

So here we are.  Breathing, again.  Thanking God, again.  Wondering why, again.  Worried, again.  Watching every breath she takes, again.  As I've said before this rollercoaster seems to never end.  While Lucy was in surgery, I began to wonder why today's events had to happen.  I wondered if God was testing my faith at my darkest moment.  I'd like to think I did ok, but who would I be fooling?  I was a wreck.  Erik was a wreck.  We were devastated.  But I know God knew our hearts.  We were just anguished like any other parent would be.  We were told our baby girl would probably die.  I'm sure God would not have expected us to be happy about that, right?  But deep in my heart I knew God would not forsake me.  I knew it in that dark moment, and I know it in this brighter moment. 

If you look outside of our hosptial room window (I'll try to get a picture tomorrow), there is an old, beautiful church up the road a bit.  We noticed when we arrived in this room that there was a large banner with the word BELIEVE written on it.  Today, Erik noticed that the banner changed to the word PRAY.  We've often wondered if that believe sign was there just for us.  I know for certain that the pray sign is. 

If our family has ever needed your prayers before, now is the time.  Lucy has jumped one hurdle but has a long, long way to go before we are out of the woods.  First we have to get her back cleared up before St. Jude will take her to begin radiation.  Post surgery she has to lay flat on her back for 24 hours without hardly moving, which I fear could be a nightmare.  This could go on for up to 3 days!  They are trying to closely monitor her spinal fluid output to determine if she is going to heal properly or not.  So as of now it will be at least Monday before we get to St. Jude, if not longer.

Specific prayer request: that God would bring healing to Lucy's back so that we can move forward with treatment.
Specific praise: the spinal fluid was clear today which means she is responding well to the antibiotics the doctors are using to treat the meningitis.

In other news......

2.  Coach Josh Pastner (head coach for the U of Memphis men's basketball team) called both Erik and me personally today to tell us he had heard about Lucy and was praying for her.  He is going to send her a "shout-out" tomorrow during his pre-game show.  How cool is that?

3.  Miss America came to Lucy's room today to visit, but in our state of chaos we were not able to visit with her.  Would have loved that photo-op.
4.  Lots of activities going on:
        T-shirt orders are being accepted and the bracelets ARE IN!     
        There is a 5K being planned in honor of Lucy with proceeds going to either LeBonheur or St. Jude
        Bakesales and  other fun activities are being held as well.

And below you will find a flyer from my good friend, Dr. Alexandra Garrett, DDS. who is donating 20% of every Zoom Teeth Whitening during March and April to the Go Lucy Go fund.  She owns Germantown Cosmetic and Family Dentistry


But no matter what, we ask that you continue to pray for Lucy.  Please also pray for me and Erik.  Pray that Lucy will be healed and we can be the strong parents she needs right now. 

In my darkest moment today, I told our doctor today that I had come to peace with God using Lucy for whatever it was he was trying to accomplish---but I wanted her back when he was done.  I know it does not work on my terms like that, but that's the deal I want to make.  God, you can use her (although I don't like it or understand it), but I want her-- I need her-- back when you get done.


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90 comments:

  1. Praying for your precious family in Cordova. Can't remember how i happened upon your blog but honored to pray! Sharon Harrison.

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  2. Lucy, you are on my mind constantly! Praying and praying! This really hits me close to home because I have an Ava just a few month younger than you. Hang in there precious sweet girlfriend. Everybody loves you and we are praying for you and your family!! Love you bunches!

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  3. Sweet Kate, friend & sister in Christ!
    First I want to say how incredible strong I think you are. God understands our feelings, emotions, hearts & frustrations. He made us! Rest in Him! He alone understands! When we don't we just hold on to Him. Last but not least, I told you before I believe it even more now; God has this. He is going to use sweet Lucy even more than He is right now. He is going to heal her, it is just going to be on His time. I love you and I am in constant prayer for Lucy, you, Erik and the rest of your family!
    Love Always, Kerri
    ~~GO LUCY GO~~

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  4. Kate-

    Just wanted to let you know how very many people are praying for a sweet girl and family they don't even know...
    Today, my son's preschool teacher relayed that she and her husband were following a blog and praying for a little girl named Lucy and her sweet family. The teacher's husband is a pastor in Midtown, and a pastor friend of his had sent him your link. How crazy and amazing!
    Again, thanks for continuing to share your story, even the hardest, darkest times, with us...for witnessing to those whom you may not realize and for guiding our prayers with specific requests. We will continue praising and praying...

    Melissa (Cunningham) Tully

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  5. I found your blog through Rebecca Cooper's and I just want to add my prayers here. I'm so glad for the "good" news your received that her cancer isn't the worst kind. I'm keeping you and your little Lucy in my prayers. You are very strong and brave. You can do this! So can Lucy. Much love from Utah, Alisha Morgan

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  6. I cannot imagine what you and Erik are going through, but I hope you are comforted by the prayers of hundreds of people around the world. God does test our faith in ways we cannot often comprehend, but we always have to remember it is all part of His plan for us on this earth. He is a mighty fortress for your family and for Lucy! I will continue to pray for healing for your precious girl and for strength for tomorrow!!

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  7. I just happened upon your blog for the first time tonight. My name is Megan... I'm from Kentucky. I wanted to tell you that I will be praying for Miss Lucy and your family. I'll be checking back in and anticipating good news!

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  8. Kate, I have been reading your blog and facebook ever since hearing about your daughter. You wrote here in this blog entry how you wonder if God was testing your faith.. this comes to mind..

    2 Timothy 2:11-15 (King James Version)

    11 It is a faithful saying: For if we be dead with him, we shall also live with him:

    12 If we suffer, we shall also reign with him: if we deny him, he also will deny us:

    13 If we believe not, yet he abideth faithful: he cannot deny himself.

    14 Of these things put them in remembrance, charging them before the Lord that they strive not about words to no profit, but to the subverting of the hearers.

    15 Study to shew thyself approved unto God, a workman that needeth not to be ashamed, rightly dividing the word of truth.

    Always remember Kate and Erik, even when we are faithless, he is faithful. I will continue to lift your family up as high as I can in my prayers. I wish I could say more to comfort you in this time, please, if you need anything other than prayer, time.. anything, let your readers know. Many of us are local. God bless.

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  9. I held my breath throughout the reading of that last entry! Something miraculous is going on here, that I know for sure! Things we can't possibly understand! Please remember that Lucy and your entire family is in the palm of God's hand and nothing reaches you without His knowledge! Know the peace of His Truth that our LORD has everything under control! We can trust Him even when we don't understand Him!
    I've learned the meaning of constant prayer by experiencing the desire and urgency of Lucy's healing! We love you all!

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  10. Kate, I am so thankful that they came back and cleared up the fact that sweet little Lucy did not have the worst case possibly! I know it is still hard seeing her laying there fighting this but as you said.... at least she has a chance! I was sharing your story yesterday with a couple of friends and they were like bless her sweet little heart. I pray that Lucy has a peaceful night as well as you and Erik are able to get as much rest as possible! Crying out to our Awesome God asking him to please heal Lucy!! Go Lucy Go!!!!!

    In Christian Love,
    Heather B. Smith

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  11. Praying hard for all of you tonight!!! Praise God for better news!! And all these people rallying FOR Lucy to pray..what an exciting and amazing thing this little girl is doing!

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  12. Oh, this post brought tears to my eyes. Prayers for you all and admire your strength. WIll continue to follow your journey and ask friends to join in praying for sweet Lucy. Go Lucy GO!

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  13. My daughter Hannah and I prayed for Lucy tonight as she was drinking her bedtime bottle. With this update I will be able to pray for your family again before I go to sleep and add so many more details. Prayers of praise, celebration, pleading and requests for sweet Lucy. Laying her at His feet once again.

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  14. Lord we lift Lucy up tonight....we ask for healing, for clear spinal fluid, for a speedy transfer, for the extra strength that Lucy and her whole family needs so desperately to keep going. We pray for peace, for the fact that you are watching over everything. That you will guide the surgeons...and the treatments needed! We praise you because you made Lucy- fearfully and wonderfully! THANK YOU!

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  15. Hi Kate,
    I am a college student at a school in Wisconsin and I saw someone posted a link to your blog on one of my favorite singers, JJ Heller's facebook page and I immediately clicked the link and read your entire story. I can't stop thinking about your family and I want you to know your sweet family and especially little Lucy are in my prayers constantly throughout the day. You are an inspiration and your strength in the Lord is truly amazing. I became a Partner In Hope at St. Jude's Children's Hospital in honor of your family today! Keep fighting hard :)

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  16. Hi Kate,
    I really can't remember how I happened to make my way to your blog today but I did. Cancer is scary. It's scary watching someone you love battle a disease that there is not a known cause for. It's hard dealing with hearing that news. Its hard some days to remember to breathe. I'm so sorry for what your family is going through. I know that saying sorry does absolutely no good. From reading your posts, it is obvious how strong your faith is. I love this! Lucy seems to be strong. Very strong. I have faith that God will see her through this. She is resilient. After I read the updates, I immediately told my mother. I felt like I had to get my entire family to pray that God will put his healing hands on your daughter. I felt that I needed to pray for peace of mind for you and your husband. That things would get a little easier for you. God never puts more on us than we can bear. Nor does he ever leave or forsake us. Thank you for sharing how Lucy is doing. She is beautiful! I will continue to pray.

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  17. a friend sent me a link to your blog, said i had to read what was going on with your little one. my prayers will be coming your way...every day!

    if lucy would like to meet Miss Memphis, please just say the word and i will make it happen.

    shay@missmemphispageant.com is my email - the best way to reach me.

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  18. I will be glad to see you get moved to St. Jude. I have such a sense of peace when I am there with my 6 year old son, Levi. We love it there and i know you will too. I feel a strength in myself now that I never did before and you will too. I will continue to pray for you and your husband. Lucy is going to fight this fight and I am positive that she is going to win. She is young, she is strong, and she has God on her side. I went through a period that I did not know if my son would survive or not but my son never had a doubt:) just like I have no doubt that everything will be ok for your daughter and for your family. You and I are lucky to have St. Jude so close by. This way we can still have our other kids close by. My God bless you and your beautiful family tonight.

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  19. I just prayed so very hard for you, Erik, your family, and most of all, sweet Lucy. Prayers of healing, strength, and comfort. I will continue to send prayers your way every day. Lucy is a strong little girl. Go Lucy Go!

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  20. Oh kate! What a terrible day to go through! Reading this post, my heart's immediate reaction was to jump out of my bed and just come hug you. Like so many others, my heart aches for Lucy and all of you. I love you guys and Ethan says he's ready for Lucy to be back :). I'm praying and, Lucy, keep fighting!

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  21. Kate, My heart aches as I read your post! What a day! We are praying for your sweet little girl! Lucy is such a fighter! Praise the Lord for the banners you saw outside your window! So many are praying for you and I have shared your story with other Christians. Along with your other prayer requests I am praying for God to give you and your husband strength!
    GO LUCY GO!!

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  22. Praying to a God who is bigger than all of us...

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  23. Sending prayers for Lucy, you & Erik from Michigan.

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  24. Kate, what an amazing witness this is to so many people. Your strength and faith astonish me! You make me want to be a better Christian and you make me want to be a better mother. I could barely stand to read the entire entry today, but thank God I did, I read and watched a great Miracle happen. I don't believe the path report was an accident, I believe it was God showing/reminding us that miracles still happen everyday! I am praying and believe that we all will witness a miracle through Lucy and I can't wait to see the next miracle! Praying for you always!

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  25. Thankful for the good news you received and continuing to pray here is Oxford, Ms. How can I get a bracelet?

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  26. Hello Kate and family! You don't know me, I found your blog last night, actually I don't know where, I think I followed a link on another blog I found. I'm so sorry for what happened to your daughter. I wish there was more I could do to help but please know I will pray daily for Lucy and for your entire family.

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  27. I found your blog via...who knows how many people that had posted about Lucy on facebook! And I know it might be weird coming from strangers, but please know that so many people are out there pulling for your little Lucy. My heart is going out to you and your family. I am praying for all of you and hope today brings you some blessing that will make a difference! Even if a tiny one! Go Lucy Go!

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  28. Stay strong Kate!

    "Do not fear, for I am with you;
    Do not anxiously look about you, for I am your God
    I will strengthen you, surely I will help you,
    Surely I will uphold you with My righteous right hand.' Is. 41:10

    Praying and pleading for healing for little Lucy!

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  29. Hi Lucy! Our families do not know each other, but I have a Bella who is only a month or so older than you and could seriously be your twin. We are praying for you every chance we get, and trust that God is going to take care of you. Much love from North Carolina, you are in our thoughts constantly.

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  30. Continuing to pray for your family, Mom "Erica" from Arkansas, and the family of the child whose horrible results those actually were! May today be a brighter day for all of you!

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  31. I have been reading your blog since the Kix 106 St. Jude telethon and heard about Lucy. I am praying for your family and I am amazed at how strong your faith is. It is truly inspiring. Just know that there are so many people praying for your family.

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  32. I wrote Lucy's name on my hand this morning... lifting her up throughout today.

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  33. I think I stopped breathing while reading the first part of your post. I cannot even imagine what that was like for you or your husband. I prayed for Lucy this morning and will continue to do so. You are an incredible Mom.

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  34. This is just touching my heart in so many ways... I am praying for Lucy and for your family. Hugs!

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  35. My heart sunk when I began reading this post too, and couldn't imagine having to hear those words as a mother. You are just amazing! God will get you and Lucy through this! Praying, praying, praying for your family. ((hugs))

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  36. Our family is praying in Millbrook, AL!

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  37. Can some contact me about making a visit this weekend. My email is ancurrin1983@yahoo.com daughter has a present for her. No its not a stuffed animal to add to the collection! :) I think Lucy will really like it.....



    A

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  38. Kate - Read your blog last night, but couldn't put together a cohesive thought. I can't even begin to imagine the highs & lowest of lows yesterday must have brought to you & Erik. I hope you all rested well, and that each day is better than the day before. Continue to take comfort in your Savior, and in all the prayers that are being said for Lucy every day. Sending you a big hug... :) cherri

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  39. continuing to pray in Starkville, MS!!

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  40. Kate and Erik,
    My heart is breaking for your family and the pain you are going through. Please know that we are praying for your family and if there is anything we can do for you, PLEASE let us know!
    BizzellLand@gmail.com

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  41. Kate, I am praying so hard for Lucy's recovery. Stay Strong!

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  42. I'm praying that Lucy would recover and that God would have his hand on your hearts as you are experiencing this incredible mountain that you are climbing. I'm praying that you will look back and God will give you incredible peace of what you will overcome. May the Lord reach down today, lift you up and carry you as you experience these difficult times.

    Don't ever feel guilty for experiencing heartache and grief over your baby girl. God does know your heart and he wants to carry you. As I'm sure you already have, crumble at his precious feet and feel no guilt for questioning and asking.

    May God reach in and comfort you today.

    I'm weeping along with you. May God heal your precious little blessing. But, may she blessing you even now as she's battling with this terrible sickness. When we are all rejoicing of God's goodness in heaven he will show us how you have impacted 100s and 1000s (or many more :)) with your story.

    Hugs!

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  43. Kate--You and your family are in my thoughts and prayers every day. Stay strong for that sweet little Angel named Lucy:)
    Much Love,
    Sally from Texas

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  44. Oh Sweet Kate...
    How we all learn that Our Father has the ultimate powere is dependant on Him. I gaze at my beautiful 4 and am greatful for His power to create, but He knows that we are meek and can't handle this, we have fear, hate, anger, and that we want to know why...but He just remains still. Please know that the Turners are praying feverishly...they are learning through Lucy & your beautiful family that life is His, and we must allow Him to have control. And that is no easy lesson for a 6,8,9, and especially 12 year old. God has given me the personal privilege to see miracles...PLEASE REMAIN WITH HEART< HEAD AND MIND OPEN to allow the HOLY SPIRIT to work on you...and the Father will guide you. We love you Miss Kate...and we pray for God's healing Hand on Lucy.

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  45. I am praying too - just one more voice. God bless you and ALL of yours.

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  46. continuing to pray!!!

    how can we order t-shirts? i would love one!! please email me @ jmkeathley07@yahoo.com with information to order one :)

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  47. My family doesn't know your family, but we heard about your precious Lucy last week. We have put her picture up on our prayer board at our house and shared her story with our children (we have 6) so we will all keep her in our minds and hearts to pray for her & all of you.

    I can't begin to imagine the agony you all are going through, especially with the events of yesterday. Please know we will all continue to pray no matter how long this journey may be for your little Lucy. I felt led to mention a website to you,that has blessed me more than I can say. It's www.elisabethelliot.org You may or may not be familiar with Elisabeth Elliot, but she has been through some incredibly horrible, horrible times in her life, & has watched God do amazing things even through such times. She is now probably around 80 years old. There are 20 years worth of newsletters she had written archived on her website, about many subjects, but she has so many things on there about suffering and pain. I just felt led to mention that today to you. I hope you don't mind. God bless you all.

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  48. We have never met, but I got goose bumps as I read your post today. I came upon your blog by following another blog that had asked for prayers for your family. I will be praying!

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  49. I have been praying for you and your family. Thank GOD that that report was wrong. What a whirlwind of emotions. I cannot imagine. I will pray for her today and in the days to come. Our prayers have just been answered in the my brother in law's cancer is in remission. So, I know prayer works!

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  50. Sending SO many prayers from Wyoming all the way to you in Tennessee. I pray for many things for you guys every day:
    #1 That you would feel God holding you and that you can feel comfortable beating on His chest. He can handle it.
    #2 That one second at a time is good enough...people always say "one day at a time" but there are times where you just need to concentrate on your next breath. That's my prayer for you all.
    #3 That God will bring comfort and healing to Lucy from her pain and her cancer.
    #4 That your family will be surrounded by people who love and care about you every second of every single day. Whether you are "surrounded" physically or just "surrounded" with love and well wishes from afar.
    So many prayers...so much love for a little girl that so many of us have never met.
    Sara (Friend of Jenni Osborne)

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  51. I'm keeping you in my thoughts, and I hope Lucy starts to feel better soon! What a trooper!

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  52. My prayers are with the family this morning. I want to encourage you with this...

    Most know that the Hebrew word shalom is understood around the world to mean "peace." However, "peace" is only one small part of the meaning of shalom. "Shalom" is used to both greet people and to bid them farewell, and it means much more than "peace, hello or goodbye"....

    According to Strong's Concordance 7965 Shalom also means completeness, wholeness, health, peace, welfare, safety, soundness, tranquility, prosperity, perfectness, fullness, rest, harmony, the absence of agitation or discord. Shalom comes from the root verb shalom meaning to be complete, perfect and full.

    Yeshua is called Sar shalom, Prince of Peace, which perfectly describes the ministry and personality of our Messiah (Isaiah 9:6).

    In other words, the word shalom is a mighty blessing!

    Proverbs 18:21 tells us there is life or death in the power of the tongue. Therefore, whenever you employ the word "shalom" you are speaking into someone's life all the wonderful things that shalom means!

    In the meantime:

    Numbers 6:24-26: YAHWEH bless you and keep you. YAHWEH make His face shine upon you and be gracious to you. YAHWEH lift up His face upon you and give you SHALOM. In the name of SAR SHALOM - the Prince of Peace.

    This is my prayer for Lucy today!

    God Bless,
    April Armstrong

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  53. Prayers have been sent up all the way from Okinawa,Japan. I know exactly what you are going through except it was me with the cancer scare. My deepest and 1 and only prayer was for God to allow me to watch my 1 year old son grow up to be an adult. My survival rate was 5 years and I have been cancer free for 2 years now. So, trust me I know exactly how you feel! If, you get a chance read 1Peter 5:7 this bible verse brings comfort to my soul in my darkest times.

    God Bless,
    Chasity Myers

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  54. Hi! I found your blog...from a friend of a friend...and I have been checking on Lucy and your family daily. Just wanted you to know that you and your family are in our prayer daily. I am so sorry that you are all having to go through this.

    I would love to order a t-shirt! I feel certain there will be more information posted soon....or you can email me at emilyandjon@hotmail.com

    Hang in there,
    Emily
    Lubbock, Texas

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  55. Sending the best wishes your way - such a terrible & unfair disease but I have hope Lucy will fight it & win!

    With love from the west coast - Sarah
    (sent via SkinnyRunner)

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  56. Kate & Family,
    I found your blog through a friend. Your faith and strength are so inspiring to me. I, too, have 2 daughters and a son, my son being the youngest, just like your sweet Jack. We prayed for Lucy and your family this morning - my little boy had tears in his eyes as I was explaining Lucy's story to him. As a mother, I cannot imagine the strength it must take for you and your husband to go through this. Obviously, God has his mighty hands around all of you and your precious Lucy. What a strong little girl you have been blessed with! We are praying for healing every day. God bless you.

    Lisa Nutt

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  57. i hate reading these stories. i am so sorry lucy is having to endure this and so very sorry your family is dealing with this as well. i freakin' dispise cancer. i will pray for lucy and your family daily. she is such a beautiful child and it's just not fair.

    keep your faith as strong as possible. God does do miracles.

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  58. Kate and Erik,
    I am another person that you don't know. But do know that heaven is being bombarded with prayers for your sweet Lucy and your whole family. My family and I are part of the army sending those prayers up. All our love!

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  59. Kate & Erik,

    I stumbled upon your blog after Summer Webb posted a link on FB. Erik, I have not seen you in years, but I saw your parents not too long ago. I just read through the first few entries on the blog and linked back to the former blog as well. As I was reading there, I was struck by a post you made back in 2009 speaking of Jennifer and Angie and wondering how you would respond if you were in their shoes. Here you are, fighting beside the Lord for your sweet Lucy. Although I do not know you personally Kate, I can say that you ARE responding the same way that Angie and Jennifer did...through it all, your faith is shining through as you trust the Lord with healing Lucy. I will be praying for you all and checking the blog for updates.

    God bless,
    Emily Gerken Elkins

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  60. Lucy's story has weighed so heavy on my heart. I have been keeping up everday with her progess and pray for her and your family often. You are a strong woman and I hope you know how many people are out there praying for you all. Lucy is just precious and I know God will bring her through this! Stay strong and we will continually pray! GO LUCY!! Much love!!

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  61. Dear Kate and Erik,
    I am so sorry to hear about Lucy. Something about her struck me deeply and I haven't been able to stop praying for her and your family. Today when reading your update I felt overwhelmed by the power of God. I felt so compelled to stop what I was doing and Praise God for what he is about to do for Lucy and your family. We are in a storm as well. This song, by Casting Crowns is humbling and is a beautiful reminder to praise God no matter what we are going through. Today, the song, coupled with the presense of God, brought me to tears of both sadness and of joy. There is something special about your family. Perhaps your infinte love for God... I often feel as alone as Job felt during his firey trial but we all know that we could never withstand what he did. After I prayed for Lucy and Praised God for what he is doing for her (even before we can physically see it), I asked the Lord for word... something I could pass along to you - some encouragement. I opened my Bible and it feel open to pages 944 and 945 of my very old withered up, beloved Bible, that was given to me by my father. These pages in my Bible represent Psalms 115-118. Obviously, sometime last year, during a very dark time in our lives, I had written with a pink highlighter, "Strength" on page 944 and "Live" on page 945. The chapter and verse that caught my eye was Psalms 118:17. I shall not die, but live, and declare the works of the Lord. I believe that we need to claim victory before we ever see it, after all, that is what faith is. Faith doesn't always come easy. When I pray, I pray first and foremost for my doubt and ubelief. It's easy to lose sight of God's promises when going through such a hard time. I believe the Bible from beginning to end. So with this, I offer you Hope and pray that you are able to find peace in his word.
    Love, Krystena
    krystena@easiky.com

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  62. Praying for Lucy....PRAYING for you and Erik. There is a saying that says "the speed of the leader is the speed of the pack" and it has come to mind over and over again as I read your update today. In order for Lucy to get better you must stay positive and strong as well. From a very similar experience I KNOW that when you commit your loved to God, you must leave that commitment with Him no matter what. Let Him do His job and you stand in awe. He WILL give you the grace and ability to accept HIS will no matter what His will is. That I know for sure.

    Hang in there and know that someone you don't know at all in Canada is earnestly praying for you and for your precious Lucy. May God's peace and understanding surround you all always.

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  63. Praying for your sweet girl in Minnesota! Go Lucy Go!

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  64. I'm praying for Lucy! For you and your husband and Lucy's siblings.
    I can't imagine what you are going through just had tears in my eyes thinking about how you all felt with the misdiagnosis. How horrible!

    Prayers will be coming daily from this family!!

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  65. I had a shirt I bought at my first marathon, "I can do all this in Christ who strengthens me," Team 411. This is your marathon of life and now every time I wear that shirt in the future, I will think of your beautiful little Lucy. We'll be praying for you everyday here in Atlanta and hope that God gives you the daily strength you and your family needs to get through his battle.

    God Bless,
    Sarah

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  66. Today I had the opportunity to share some of Lucy's story with a couple of custodial workers where I'm doing this month's clinical rotation for pharmacy school. Tears were welling up in my eyes as we reflected upon the POWER of prayer. They want Lucy to know that she is being prayed for at the Veterans Affairs hospital in Nashville, TN.

    Jennifer

    (Found your blog through Emily Peyton Cook, who did my wedding pictures)

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  67. Praying for you sweet Lucy! Stay strong!

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  68. Kate, I am at a loss for words. I can not even begin to imagine the pain you all went through yesterday. There is not a day that goes by that we do not think of you and pray for Lucy, you, Erik, the doctors, and nurses. We will continue to lift you all up in prayers. Stay strong!!! (I know that is easier said...)We love you!

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  69. There's not a day that goes by that I don't think of Lucy and pray like she was my own. Your story touches so many lives. Me and my family are praying everyday and will continue to do that. I know you will get through this. Just believe! GO LUCY GO!! Keep the faith! I will contine to pray for u Kate and Erik as well that god will give you both strength.

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  70. Praying for you, your family, and sweet Lucy from Tallahassee, Florida!!!

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  71. I am not only praying, but begging and pleading with you as well. Lord, heal little Lucy from the top of her head to the tips of her toes. I am claiming this healing in Jesus name!!!!

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  72. Kate,

    I found your blog through another blog and have been following Lucy's story. Praying for her, you and Erik. The Great Physician is holding her.

    In His Arms,
    Kelly

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  73. I didn't read all of the comments so I don't know if this has been asked already, but does anyone know how we can get bracelets? someone could email me at hilwiesemann@comcast.net and let me know! Thanks!!

    Thinking of you Lucy!!

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  74. I have no idea who you are but just came upon this blog by "accident." I want you to know I am praying for you and asking many of my church members to do the same. I am the director of our VBS in our small church and have never pushed offering , but this year I plan to PUSH offering for Lucy. I feel that this is what God would have me to do. I will continue to pray for Lucy and the family. I can't imagine what you all are going through. My heart is broken and I have never met you.

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  75. Kate, I am praying for your precious family! I have sent e-mails out, I have you listed on my blog, I have posted about your blog, and I will continue to spread the word...I believe in the power of prayer! Thinking of you and your family!!

    Amy M.

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  76. Kate and Erik,

    First let me say, I am so sorry that you all are going through this. I pray for Lucy and you all every day, multiple times a day. We all think, it won't happen to us. You show me that is can happen to any one, in the blink of an eye. I have four kids and thank God for their health. I have taken for granted that it can change so quickly... I am so glad you all got better news today than the first results you received. I can't help but think though, somewhere, someone is getting those other results. The one that is correct for them or their child. My heart aches for them as well. I will pray for that unknown person tonight when I pray for you all. I know Lucy will make it through this, I can just feel, everything will be ok. Please keep your heads up and give that precious baby lots of hugs and kisses.

    Christy Scott
    Covington, TN

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  77. Continuing to pray for Lucy and your family!

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  78. I am praying for your entire family ... for your physical AND emotional strength. Having a sick child is definitely like running one of those crazy, ultra marathons ... only longer, more intense & more painful … and you WILL be stretched & pushed further than you ever thought imaginable … and God will be there with you, by your side – by Erik’s side – and MOST DEFINITELY by Lucy’s side.

    In addition, I will be praying for the family whose child’s pathology results were inadvertently given to Erik.

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  79. Praying for you and sweet Lucy. Also praying for the other family.

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  80. I'm still not getting over the shock of finding out that you were given the WRONG report! I cannot even imagine how that felt!

    Lucy continues to be in my prayers. Although I do not know any of you personally, there is not a day that goes by without me thinking of yall. I just love seeing all the pink and purple ribbons in my neighborhood.

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  81. Kate,
    You are so right in saying that we need to pray now more fervently than ever! All of the bake sales, t-shirts, and other activities mean nothing compared to the kingdom work of God's people lifting up Lucy and standing on God's promises to heal those who come to Him with a clean and pure heart! May we all come to Him that way so that Heaven is opened to hear our cries! My heart aches for you and Erik and all that you have been through but God showed you He was in control yesterday and I praise Him for that.
    Zach

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  82. Kate
    My name is Alicia Ferrell. I'm so sorry to hear about Lucy and my prayers are with you. I'm also sorry to hear she missed out on her birthday party that y'all had planned for her at pump it up. With that being said I would like to let you know that I work for Playland partyzone which is a place just like pump it up that is located in Munford just off hwy 51. We at Playland would love to give her a free party when she gets out of the hospital. If you have any questions or need anything at all please don't hesitate to call us at Playland 901-840-4555 or 901-262-3717 and talk to Mary she's the owner. Our thoughts and prayers are with you, Lucy, and y'alls family.
    GO LUCY GO!!!

    Alicia

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  83. Hi Kate. I stumbled on your blog and I just want you to know that there is another prayer warrior for your sweet Lucy. I will be keeping Lucy and your family in my prayers.

    Brittany Stokes

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  84. This just comes to show how the devil likes to come around and fool us into thinking the worst possible. I can't even imagine what your family is going through at this time. As the verse Matthew 18:19 states "Again I say to you that if two of you agree on earth concerning anything that they ask, it will be done for them by My Father in heaven" We are all praying for Lucy and thy will be done!! I will continue to keep Lucy and your family in my prayers.

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  85. Would love to get a shirt and a bracelet. Let me know what I need to do. Jenng512@gmail.com

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  86. Kate,
    As I just rocked my 2 1/2 year old to sleep, I prayed aloud over your sweet Lucy. My heart is heavy, beyond words, over your situation, but I am so encouraged to know you believe in the Lord Jesus Christ. I don't pretend to have any idea what you're going through, but I put myself in your shoes and reflect on the lives of my own children and try to imagine what your heart must feel. I want you to know that I am praying for you, your family and sweet little Lucy. James 1:6 says, "But when you ask, you must believe and not doubt, because the one who doubts is like a wave of the sea, blown and tossed by the wind." Matthew 19:26 says, "Jesus looked at them and said, 'With man this is impossible, but with God all things are possible.'" God spoke these to me just this morning as I read your blog. I know, so many times in my life, I've said it with my mouth but not really believed it in my heart. I want you to know that I believe in my heart that God can heal Lucy with one touch of His hand. I don't know for certain that He will, but I know that He can. And I promise to you and your sweet family, before the Lord, that I believe with my whole heart and I will approach His throne daily and plead with Him to miraculously heal her. I will pray the blood of Jesus over her and ask Him to take this cancer away and that He will be honored and glorified beyond anything we can ever imagine. I know, that with Him, this is possible, just as His word says. He is a God of truth and I believe Him. I pray that He will fill your heart and the heart of your husband with comfort and peace beyond your understanding. I pray Psalm 91:1 that you will dwell in the shelter of the Most High and rest in the shadow of the Almighty during this journey and that you will say of the Lord, "He is my refuge and fortress, my God, in whom I trust."

    Angie Wilson (heard about you from Hope O'Briant)

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  87. Kate,

    I came across your blog through Adreinne's "Our Journey To Parenthood" blog. My heart breaks for you and your family as you go through this with your precious little girl. I just wanted to let you know that I will be fervently lifting Lucy, and all of you, up in prayer and praying for complete healing and strength and comfort.

    Jenny

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  88. I moved from Memphis last fall. However, I still keep up with the news in my hometown and saw the recent piece on Lucy. I used to work at St. Jude in the neuro-oncology department as a research nurse. If you do decide treatment is the right path, the neuro-oncology team at St. Jude is top notch. They are very caring and compassionate. Dr. Amar Gajjar is an expert in medulloblastomas. Our prayers are with your little girl, your family, and the skilled nurses and physicians at LeBonheur and St. Jude.

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